{"id":3428,"date":"2023-01-09T15:54:21","date_gmt":"2023-01-09T15:54:21","guid":{"rendered":"https:\/\/cureclcn4.org\/empfehlungen-fuer-die-gesundheitsueberwachung-und-gezielte-therapien\/"},"modified":"2023-01-09T15:54:22","modified_gmt":"2023-01-09T15:54:22","slug":"empfehlungen-fuer-die-gesundheitsueberwachung-und-gezielte-therapien","status":"publish","type":"page","link":"https:\/\/cureclcn4.org\/de\/empfehlungen-fuer-die-gesundheitsueberwachung-und-gezielte-therapien\/","title":{"rendered":"Empfehlungen f\u00fcr die Gesundheits\u00fcberwachung und gezielte Therapien"},"content":{"rendered":"

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type=“4_4″ _builder_version=“3.25″ custom_padding=“|||“ custom_padding__hover=“|||“][et_pb_text _builder_version=“4.5.8″ text_font=“Faustina||||||||“ text_font_size=“24px“ text_line_height=“2em“ link_font=“|700|||||||“ link_text_color=“#26c699″ header_font=“||||||||“ header_2_font=“Faustina|600|||||||“ header_2_text_color=“#0e7162″ header_2_font_size=“42px“ header_2_line_height=“1.4em“ text_orientation=“center“ max_width=“850px“ module_alignment=“center“ text_font_size_tablet=““ text_font_size_phone=“17px“ text_font_size_last_edited=“on|phone“ header_2_font_size_tablet=“32px“ header_2_font_size_phone=“22px“ header_2_font_size_last_edited=“on|desktop“ locked=“off“]<\/p>\n

Empfehlungen f\u00fcr die Gesundheits\u00fcberwachung und gezielte Therapien<\/h2>\n

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Derzeit ist keine Heilung f\u00fcr eine CLCN4-bedingte St\u00f6rung bekannt. Fr\u00fchzeitige Interventionen und Bildungsprogramme k\u00f6nnen jedoch das Lernen und die soziale Entwicklung maximieren, und Medikamente k\u00f6nnen helfen, die Symptome zu kontrollieren. Eine aggressive Behandlung von Anfallsleiden ist besonders wichtig, um die Entwicklungsergebnisse zu maximieren.<\/p>\n

Wir empfehlen eine regelm\u00e4\u00dfige Gesundheits\u00fcberwachung:<\/strong><\/p>\n

1. Enge Entwicklungs\u00fcberwachung durch einen Kinderarzt<\/strong> mit geeigneter \u00dcberweisung zur Fr\u00fchf\u00f6rderung und kontinuierlicher Unterst\u00fctzung in und nach der Schule.<\/p>\n

2. \u00dcberweisung an einen Neurologen<\/strong> zur Untersuchung und\/oder zum Neuroimaging, wenn es sich um neu auftretende oder fortschreitende neurologische Symptome einschlie\u00dflich Krampfanf\u00e4llen oder Bewegungsst\u00f6rungen handelt.<\/p>\n

3. Unverz\u00fcgliche \u00dcberweisung an einen Spezialisten f\u00fcr psychische Gesundheit<\/strong>, wenn Bedenken hinsichtlich Depressionen oder Angstsymptomen bestehen, auch bei weiblichen Tr\u00e4gern dieser Erkrankung.<\/p>\n

4. \u00dcberweisung an einen Endokrinologen<\/strong>, wenn Bedenken wegen Kleinwuchs und\/oder Wachstumsst\u00f6rungen bestehen.<\/p>\n

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Nehmen Sie Kontakt auf. Engagieren Sie sich.<\/h2>\n

[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=“3.25″ background_color=“#ffffff“ max_width=“850px“ custom_padding=“60px|60px|60px|60px|true|true“ animation_style=“slide“ animation_direction=“top“ animation_intensity_slide=“2%“ box_shadow_style=“preset3″ box_shadow_vertical=“40px“ box_shadow_blur=“100px“ box_shadow_spread=“-30px“ box_shadow_color=“rgba(0,0,0,0.22)“ use_custom_width=“on“ custom_width_px=“850px“][et_pb_column type=“4_4″ _builder_version=“3.25″ custom_padding=“|||“ custom_padding__hover=“|||“][et_pb_contact_form email=“info@cureclcn4.org“ success_message=“Vielen Dank f\u00fcr die Kontaktaufnahme. 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Empfehlungen f\u00fcr die Gesundheits\u00fcberwachung und gezielte TherapienDerzeit ist keine Heilung f\u00fcr eine CLCN4-bedingte St\u00f6rung bekannt. Fr\u00fchzeitige Interventionen und Bildungsprogramme k\u00f6nnen jedoch das Lernen und die soziale Entwicklung maximieren, und Medikamente k\u00f6nnen helfen, die Symptome zu kontrollieren. Eine aggressive Behandlung von Anfallsleiden ist besonders wichtig, um die Entwicklungsergebnisse zu maximieren. Wir empfehlen eine regelm\u00e4\u00dfige Gesundheits\u00fcberwachung: 1. […]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-3428","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/cureclcn4.org\/de\/wp-json\/wp\/v2\/pages\/3428","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cureclcn4.org\/de\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/cureclcn4.org\/de\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/cureclcn4.org\/de\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/cureclcn4.org\/de\/wp-json\/wp\/v2\/comments?post=3428"}],"version-history":[{"count":2,"href":"https:\/\/cureclcn4.org\/de\/wp-json\/wp\/v2\/pages\/3428\/revisions"}],"predecessor-version":[{"id":3430,"href":"https:\/\/cureclcn4.org\/de\/wp-json\/wp\/v2\/pages\/3428\/revisions\/3430"}],"wp:attachment":[{"href":"https:\/\/cureclcn4.org\/de\/wp-json\/wp\/v2\/media?parent=3428"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}