{"id":7506,"date":"2026-01-06T19:18:43","date_gmt":"2026-01-06T19:18:43","guid":{"rendered":"https:\/\/cureclcn4.org\/research-mission\/"},"modified":"2026-01-06T19:18:44","modified_gmt":"2026-01-06T19:18:44","slug":"research-mission","status":"publish","type":"page","link":"https:\/\/cureclcn4.org\/de\/research-mission\/","title":{"rendered":"Research Mission"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8220;1&#8243; admin_label=&#8220;Video&#8220; _builder_version=&#8220;4.16&#8243; background_color=&#8220;#3a897e&#8220; custom_padding=&#8220;0|1px|0|0px|false|false&#8220; collapsed=&#8220;off&#8220; global_colors_info=&#8220;{}&#8220;][et_pb_row _builder_version=&#8220;4.16&#8243; _module_preset=&#8220;default&#8220; global_colors_info=&#8220;{}&#8220;][et_pb_column type=&#8220;4_4&#8243; _builder_version=&#8220;4.16&#8243; _module_preset=&#8220;default&#8220; global_colors_info=&#8220;{}&#8220;][et_pb_divider show_divider=&#8220;off&#8220; _builder_version=&#8220;4.16&#8243; _module_preset=&#8220;default&#8220; global_colors_info=&#8220;{}&#8220;][\/et_pb_divider][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8220;1&#8243; admin_label=&#8220;Header&#8220; _builder_version=&#8220;4.16&#8243; background_color=&#8220;#f7f9f9&#8243; parallax=&#8220;on&#8220; collapsed=&#8220;off&#8220; global_colors_info=&#8220;{}&#8220; theme_builder_area=&#8220;post_content&#8220;][et_pb_row column_structure=&#8220;1_2,1_2&#8243; _builder_version=&#8220;4.27.4&#8243; custom_padding=&#8220;0px|||||&#8220; hover_enabled=&#8220;0&#8243; global_colors_info=&#8220;{}&#8220; theme_builder_area=&#8220;post_content&#8220; sticky_enabled=&#8220;0&#8243; make_equal=&#8220;on&#8220;][et_pb_column type=&#8220;1_2&#8243; _builder_version=&#8220;4.16&#8243; custom_padding=&#8220;80px||40px|&#8220; custom_padding_tablet=&#8220;0px||&#8220; custom_padding_phone=&#8220;&#8220; custom_padding_last_edited=&#8220;on|tablet&#8220; hover_enabled=&#8220;0&#8243; global_colors_info=&#8220;{}&#8220; padding_tablet=&#8220;0px||&#8220; padding_last_edited=&#8220;on|tablet&#8220; custom_padding__hover=&#8220;|||&#8220; padding_phone=&#8220;0px||&#8220; theme_builder_area=&#8220;post_content&#8220; sticky_enabled=&#8220;0&#8243;][et_pb_text _builder_version=&#8220;4.27.4&#8243; text_font=&#8220;||||||||&#8220; text_line_height=&#8220;2em&#8220; header_font=&#8220;Faustina|600|||||||&#8220; header_text_color=&#8220;#0e7162&#8243; header_font_size=&#8220;60px&#8220; header_line_height=&#8220;1.3em&#8220; custom_margin=&#8220;0px||||false|false&#8220; hover_enabled=&#8220;0&#8243; header_font_size_tablet=&#8220;50px&#8220; header_font_size_phone=&#8220;40px&#8220; header_font_size_last_edited=&#8220;on|phone&#8220; global_colors_info=&#8220;{}&#8220; theme_builder_area=&#8220;post_content&#8220; sticky_enabled=&#8220;0&#8243; min_height=&#8220;69px&#8220;]<\/p>\n<h1>Forschungsauftrag<\/h1>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8220;4.27.4&#8243; text_font=&#8220;||||||||&#8220; text_font_size=&#8220;18px&#8220; text_line_height=&#8220;1.8em&#8220; header_font=&#8220;Faustina||||||||&#8220; header_text_color=&#8220;#0e7162&#8243; header_font_size=&#8220;60px&#8220; header_line_height=&#8220;1.3em&#8220; custom_margin=&#8220;||17px|||&#8220; hover_enabled=&#8220;0&#8243; global_colors_info=&#8220;{}&#8220; theme_builder_area=&#8220;post_content&#8220; sticky_enabled=&#8220;0&#8243;]<\/p>\n<p style=\"text-align: justify;\">Die CLCN4-bedingte Erkrankung ist selten, komplex und noch immer schlecht verstanden. Familien leben mit unbeantworteten Fragen, begrenzter Beratung und der Ungewissheit, was vor ihnen liegt. <\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8220;4.27.4&#8243; text_font=&#8220;||||||||&#8220; text_font_size=&#8220;24px&#8220; text_line_height=&#8220;2em&#8220; header_font=&#8220;Faustina||||||||&#8220; header_text_color=&#8220;#0e7162&#8243; header_font_size=&#8220;60px&#8220; header_line_height=&#8220;1.3em&#8220; custom_margin=&#8220;||17px|||&#8220; hover_enabled=&#8220;0&#8243; global_colors_info=&#8220;{}&#8220; theme_builder_area=&#8220;post_content&#8220; sticky_enabled=&#8220;0&#8243;]<\/p>\n<p style=\"text-align: justify;\"><strong>Cure CLCN4 ist hier, um das zu \u00e4ndern.<\/strong><\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8220;4.27.4&#8243; text_font=&#8220;||||||||&#8220; text_font_size=&#8220;18px&#8220; text_line_height=&#8220;1.8em&#8220; header_font=&#8220;Faustina||||||||&#8220; header_text_color=&#8220;#0e7162&#8243; header_font_size=&#8220;60px&#8220; header_line_height=&#8220;1.3em&#8220; custom_margin=&#8220;||17px|||&#8220; hover_enabled=&#8220;0&#8243; global_colors_info=&#8220;{}&#8220; theme_builder_area=&#8220;post_content&#8220; sticky_enabled=&#8220;0&#8243;]<\/p>\n<p style=\"text-align: justify;\">Wir treiben die Forschung und die globalen Partnerschaften voran, die notwendig sind, um CLCN4 zu verstehen und den Weg f\u00fcr zuk\u00fcnftige Behandlungen zu ebnen. Unser Ziel ist es, neue wissenschaftliche Erkenntnisse in sinnvolle Ver\u00e4nderungen f\u00fcr Familien weltweit umzusetzen. <\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8220;1_2&#8243; _builder_version=&#8220;4.27.4&#8243; custom_padding=&#8220;|||&#8220; hover_enabled=&#8220;0&#8243; global_colors_info=&#8220;{}&#8220; custom_padding__hover=&#8220;|||&#8220; theme_builder_area=&#8220;post_content&#8220; sticky_enabled=&#8220;0&#8243;][et_pb_image src=&#8220;https:\/\/cureclcn4.org\/wp-content\/uploads\/2025\/11\/Research_Mission_hero_section-scaled.png&#8220; show_bottom_space=&#8220;off&#8220; align_tablet=&#8220;center&#8220; align_phone=&#8220;&#8220; align_last_edited=&#8220;on|tablet&#8220; _builder_version=&#8220;4.27.4&#8243; custom_margin=&#8220;0px||||false|false&#8220; animation_style=&#8220;slide&#8220; animation_direction=&#8220;right&#8220; animation_intensity_slide=&#8220;2%&#8220; hover_enabled=&#8220;0&#8243; global_colors_info=&#8220;{}&#8220; theme_builder_area=&#8220;post_content&#8220; 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header_2_line_height=&#8220;1.4em&#8220; text_orientation=&#8220;center&#8220; max_width=&#8220;850px&#8220; module_alignment=&#8220;center&#8220; text_font_size_tablet=&#8220;&#8220; text_font_size_phone=&#8220;17px&#8220; text_font_size_last_edited=&#8220;on|phone&#8220; header_2_font_size_tablet=&#8220;32px&#8220; header_2_font_size_phone=&#8220;22px&#8220; header_2_font_size_last_edited=&#8220;on|desktop&#8220; locked=&#8220;off&#8220; global_colors_info=&#8220;{}&#8220;]<\/p>\n<h2><span style=\"font-size: xx-large;\">Wir wollen dies erreichen, indem wir&#8230;<\/span><\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=&#8220;on|phone&#8220; _builder_version=&#8220;4.16&#8243; background_color=&#8220;#ffffff&#8220; max_width=&#8220;1200px&#8220; custom_padding=&#8220;29px|80px|28px|80px|false|false&#8220; custom_padding_tablet=&#8220;|80px||80px|false|true&#8220; custom_padding_phone=&#8220;40px|30px||30px||true&#8220; box_shadow_style=&#8220;preset3&#8243; box_shadow_vertical=&#8220;40px&#8220; box_shadow_blur=&#8220;100px&#8220; box_shadow_spread=&#8220;-30px&#8220; box_shadow_color=&#8220;rgba(0,0,0,0.22)&#8220; use_custom_width=&#8220;on&#8220; custom_width_px=&#8220;1200px&#8220; global_colors_info=&#8220;{}&#8220;][et_pb_column type=&#8220;4_4&#8243; _builder_version=&#8220;4.16&#8243; custom_padding=&#8220;|||&#8220; global_colors_info=&#8220;{}&#8220; custom_padding__hover=&#8220;|||&#8220;][et_pb_blurb content_max_width=&#8220;800px&#8220; _builder_version=&#8220;4.27.4&#8243; header_font=&#8220;|700|||||||&#8220; header_font_size=&#8220;16px&#8220; header_line_height=&#8220;2em&#8220; body_font_size=&#8220;17px&#8220; body_line_height=&#8220;2em&#8220; global_colors_info=&#8220;{}&#8220;]<\/p>\n<ul>\n<li style=\"text-align: justify;\">Versorgung der wissenschaftlichen und klinischen Gemeinschaft mit den notwendigen <a href=\"https:\/\/cureclcn4.org\/de\/forschungsinstrumente\/\"><strong>Forschungsinstrumenten<\/strong><\/a> um unser Verst\u00e4ndnis von <em>CLCN4-bezogenen<\/em> Erkrankungen zu verbessern.<\/li>\n<\/ul>\n<ul style=\"text-align: justify;\">\n<li><strong>Identifizierung und <a href=\"https:\/\/cureclcn4.org\/grant-calls\/\">Finanzierung<\/a> von Forschungsprojekten<\/strong>, die das Potenzial haben, zum aktuellen Wissen \u00fcber die Biologie und die Pathomechanismen von<em> CLCN4-bezogenen<\/em> Erkrankungen beizutragen.<\/li>\n<\/ul>\n<ul style=\"text-align: justify;\">\n<li>Unterst\u00fctzung beim Aufbau eines <strong><a href=\"https:\/\/cureclcn4.org\/clcn4-research-network\/\">internationalen Netzwerks<\/a> von Forschern und Klinikern<\/strong>, die sich mit der Erforschung von <em>CLCN4-bezogenen<\/em> Erkrankungen und\/oder der Behandlung von Menschen mit dieser Erkrankung besch\u00e4ftigen.<\/li>\n<\/ul>\n<ul style=\"text-align: justify;\">\n<li>Unterst\u00fctzung bei der <strong>Identifizierung von Patienten<\/strong> mit <em>CLCN4-bedingten<\/em> Erkrankungen durch Zusammenarbeit mit genetischen Labors in Gro\u00dfbritannien und im Ausland, um <em>CLCN4<\/em> in Gentests aufzunehmen und Familien mit verf\u00fcgbaren Ressourcen zu versorgen.<\/li>\n<\/ul>\n<ul style=\"text-align: justify;\">\n<li>Unterst\u00fctzen Sie die Bem\u00fchungen, ein <strong>offizielles <a href=\"https:\/\/cureclcn4.org\/de\/patienten-register\/\">CLCN4-Patientenregister<\/a><\/strong> einzurichten und zu pflegen, mit dem letztendlichen Ziel, einen Datensatz zum nat\u00fcrlichen Verlauf zu erstellen.<\/li>\n<\/ul>\n<ul>\n<li style=\"text-align: justify;\"><strong>Sensibilisierung<\/strong> der wissenschaftlichen und medizinischen Gemeinschaft f\u00fcr die <em>CLCN4-Krankheit<\/em> und F\u00f6rderung des Engagements der Forschung f\u00fcr diese Krankheit.<\/li>\n<\/ul>\n<p>[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=&#8220;1_2,1_2&#8243; 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Engagieren Sie sich.<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8220;4.16&#8243; background_color=&#8220;#ffffff&#8220; max_width=&#8220;850px&#8220; custom_padding=&#8220;60px|60px|60px|60px|true|true&#8220; animation_style=&#8220;slide&#8220; animation_direction=&#8220;top&#8220; animation_intensity_slide=&#8220;2%&#8220; box_shadow_style=&#8220;preset3&#8243; box_shadow_vertical=&#8220;40px&#8220; box_shadow_blur=&#8220;100px&#8220; box_shadow_spread=&#8220;-30px&#8220; box_shadow_color=&#8220;rgba(0,0,0,0.22)&#8220; use_custom_width=&#8220;on&#8220; custom_width_px=&#8220;850px&#8220; global_colors_info=&#8220;{}&#8220;][et_pb_column type=&#8220;4_4&#8243; _builder_version=&#8220;4.16&#8243; custom_padding=&#8220;|||&#8220; global_colors_info=&#8220;{}&#8220; custom_padding__hover=&#8220;|||&#8220;][et_pb_contact_form email=&#8220;info@cureclcn4.org&#8220; success_message=&#8220;Vielen Dank f\u00fcr die Kontaktaufnahme. 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