{"id":2108,"date":"2021-11-19T15:21:44","date_gmt":"2021-11-19T15:21:44","guid":{"rendered":"https:\/\/cureclcn4.org\/recomendaciones-para-la-vigilancia-sanitaria-y-las-terapias-dirigidas\/"},"modified":"2023-01-06T11:32:32","modified_gmt":"2023-01-06T11:32:32","slug":"recomendaciones-para-la-vigilancia-sanitaria-y-las-terapias-dirigidas","status":"publish","type":"page","link":"https:\/\/cureclcn4.org\/es\/recomendaciones-para-la-vigilancia-sanitaria-y-las-terapias-dirigidas\/","title":{"rendered":"Recomendaciones para la vigilancia sanitaria y las terapias dirigidas"},"content":{"rendered":"<p>[et_pb_section fb_built=\u00bb1&#8243; admin_label=\u00bbVideo\u00bb _builder_version=\u00bb3.22&#8243; background_color=\u00bb#3a897e\u00bb custom_padding=\u00bb0|1px|0|0px|false|false\u00bb collapsed=\u00bboff\u00bb][et_pb_row _builder_version=\u00bb4.5.8&#8243; _module_preset=\u00bbdefault\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb4.5.8&#8243; _module_preset=\u00bbdefault\u00bb][et_pb_divider show_divider=\u00bboff\u00bb _builder_version=\u00bb4.5.8&#8243; 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background_color=\u00bb#ffffff\u00bb max_width=\u00bb1200px\u00bb custom_padding=\u00bb29px|80px|28px|80px|false|false\u00bb custom_padding_tablet=\u00bb|80px||80px|false|true\u00bb custom_padding_phone=\u00bb40px|30px||30px||true\u00bb box_shadow_style=\u00bbpreset3&#8243; box_shadow_vertical=\u00bb40px\u00bb box_shadow_blur=\u00bb100px\u00bb box_shadow_spread=\u00bb-30px\u00bb box_shadow_color=\u00bbrgba(0,0,0,0.22)\u00bb use_custom_width=\u00bbon\u00bb custom_width_px=\u00bb1200px\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb4.5.8&#8243; custom_padding=\u00bb|||\u00bb custom_padding__hover=\u00bb|||\u00bb][et_pb_blurb content_max_width=\u00bb800px\u00bb _builder_version=\u00bb4.5.8&#8243; header_font=\u00bb|700|||||||\u00bb header_font_size=\u00bb16px\u00bb header_line_height=\u00bb2em\u00bb body_line_height=\u00bb2em\u00bb custom_padding=\u00bb||2px|||\u00bb]Actualmente, no se conoce ninguna cura para la CLCN4. Sin embargo, las intervenciones tempranas y los programas educativos pueden maximizar el aprendizaje y el desarrollo social, y los medicamentos pueden ayudar a controlar los s\u00edntomas. El tratamiento agresivo del trastorno convulsivo es especialmente importante para maximizar los resultados del desarrollo.<\/p>\n<p><strong>Recomendamos una vigilancia sanitaria peri\u00f3dica que incluya<\/strong><\/p>\n<p><strong>1. Una estrecha vigilancia del desarrollo por parte de un pediatra<\/strong>, con la derivaci\u00f3n adecuada para una intervenci\u00f3n temprana y un apoyo continuo en la escuela y despu\u00e9s de ella.<\/p>\n<p><strong>2. Derivaci\u00f3n a un neur\u00f3logo<\/strong> para que le examine y\/o le haga una neuroimagen si le preocupan los s\u00edntomas neurol\u00f3gicos de nueva aparici\u00f3n o progresivos, incluidas las convulsiones o el trastorno del movimiento.<\/p>\n<p><strong>3. Derivaci\u00f3n inmediata a un especialista en salud mental<\/strong> si hay preocupaci\u00f3n por los s\u00edntomas de depresi\u00f3n o ansiedad, incluso en mujeres portadoras.<\/p>\n<p><strong>4. Derivaci\u00f3n a un endocrin\u00f3logo<\/strong> si hay preocupaci\u00f3n sobre baja estatura y\/o retraso del crecimiento.[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00bb1&#8243; admin_label=\u00bbVideo\u00bb _builder_version=\u00bb3.22&#8243; background_color=\u00bb#3a897e\u00bb custom_padding=\u00bb0|1px|0|0px|false|false\u00bb collapsed=\u00bboff\u00bb][et_pb_row _builder_version=\u00bb4.5.8&#8243; _module_preset=\u00bbdefault\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb4.5.8&#8243; _module_preset=\u00bbdefault\u00bb][et_pb_divider show_divider=\u00bboff\u00bb _builder_version=\u00bb4.5.8&#8243; _module_preset=\u00bbdefault\u00bb][\/et_pb_divider][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00bb1&#8243; fullwidth=\u00bbon\u00bb _builder_version=\u00bb3.22&#8243; background_color=\u00bb#f7f9f9&#8243; use_background_color_gradient__hover=\u00bboff\u00bb use_background_color_gradient__hover_enabled=\u00bboff\u00bb background_color_gradient_start__hover=\u00bb#2b87da\u00bb background_color_gradient_start__hover_enabled=\u00bb#2b87da\u00bb background_color_gradient_end__hover=\u00bb#29c4a9&#8243; background_color_gradient_end__hover_enabled=\u00bb#29c4a9&#8243; background_color_gradient_type__hover=\u00bblinear\u00bb background_color_gradient_type__hover_enabled=\u00bblinear\u00bb background_color_gradient_direction__hover=\u00bb180deg\u00bb background_color_gradient_direction__hover_enabled=\u00bb180deg\u00bb background_color_gradient_direction_radial__hover=\u00bbcenter\u00bb background_color_gradient_direction_radial__hover_enabled=\u00bbcenter\u00bb background_color_gradient_start_position__hover=\u00bb0%\u00bb background_color_gradient_start_position__hover_enabled=\u00bb0%\u00bb background_color_gradient_end_position__hover=\u00bb100%\u00bb background_color_gradient_end_position__hover_enabled=\u00bb100%\u00bb background_color_gradient_overlays_image__hover=\u00bboff\u00bb background_color_gradient_overlays_image__hover_enabled=\u00bboff\u00bb parallax__hover=\u00bboff\u00bb parallax__hover_enabled=\u00bboff\u00bb parallax_method__hover=\u00bbon\u00bb parallax_method__hover_enabled=\u00bbon\u00bb background_size__hover=\u00bbcover\u00bb background_size__hover_enabled=\u00bbcover\u00bb background_position__hover=\u00bbcenter\u00bb background_position__hover_enabled=\u00bbcenter\u00bb background_repeat__hover=\u00bbno-repeat\u00bb background_repeat__hover_enabled=\u00bbno-repeat\u00bb background_blend__hover=\u00bbnormal\u00bb background_blend__hover_enabled=\u00bbnormal\u00bb allow_player_pause__hover=\u00bboff\u00bb allow_player_pause__hover_enabled=\u00bboff\u00bb background_video_pause_outside_viewport__hover=\u00bbon\u00bb background_video_pause_outside_viewport__hover_enabled=\u00bbon\u00bb][et_pb_fullwidth_image src=\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2020\/08\/charity-23.png\u00bb _builder_version=\u00bb3.17.6&#8243; animation_style=\u00bbslide\u00bb animation_direction=\u00bbbottom\u00bb animation_intensity_slide=\u00bb4%\u00bb][\/et_pb_fullwidth_image][\/et_pb_section][et_pb_section fb_built=\u00bb1&#8243; admin_label=\u00bbFooter\u00bb _builder_version=\u00bb3.22&#8243; background_color=\u00bbrgba(14,113,98,0.9)\u00bb use_background_color_gradient=\u00bbon\u00bb background_color_gradient_start=\u00bb#0e7162&#8243; background_color_gradient_end=\u00bbrgba(14,113,98,0.88)\u00bb background_color_gradient_overlays_image=\u00bbon\u00bb background_image=\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2020\/08\/charity-25.jpg\u00bb collapsed=\u00bboff\u00bb][et_pb_row _builder_version=\u00bb3.25&#8243;][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb3.25&#8243; custom_padding=\u00bb|||\u00bb custom_padding__hover=\u00bb|||\u00bb][et_pb_text _builder_version=\u00bb4.5.8&#8243; text_font=\u00bb||||||||\u00bb text_line_height=\u00bb2em\u00bb ul_font=\u00bb||||||||\u00bb ol_font=\u00bb||||||||\u00bb header_font=\u00bb||||||||\u00bb header_2_font=\u00bbFaustina|600|||||||\u00bb header_2_font_size=\u00bb42px\u00bb header_2_line_height=\u00bb1.4em\u00bb header_3_font=\u00bb||||||||\u00bb header_4_font=\u00bb||||||||\u00bb header_5_font=\u00bb||||||||\u00bb header_6_font=\u00bb||||||||\u00bb text_orientation=\u00bbcenter\u00bb background_layout=\u00bbdark\u00bb max_width=\u00bb600px\u00bb module_alignment=\u00bbcenter\u00bb header_2_font_size_tablet=\u00bb32px\u00bb header_2_font_size_phone=\u00bb22px\u00bb header_2_font_size_last_edited=\u00bbon|desktop\u00bb locked=\u00bboff\u00bb]<\/p>\n<h2>Ponte en contacto. Participa.<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=\u00bb3.25&#8243; background_color=\u00bb#ffffff\u00bb max_width=\u00bb850px\u00bb custom_padding=\u00bb60px|60px|60px|60px|true|true\u00bb animation_style=\u00bbslide\u00bb animation_direction=\u00bbtop\u00bb animation_intensity_slide=\u00bb2%\u00bb box_shadow_style=\u00bbpreset3&#8243; box_shadow_vertical=\u00bb40px\u00bb box_shadow_blur=\u00bb100px\u00bb box_shadow_spread=\u00bb-30px\u00bb box_shadow_color=\u00bbrgba(0,0,0,0.22)\u00bb use_custom_width=\u00bbon\u00bb custom_width_px=\u00bb850px\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb3.25&#8243; custom_padding=\u00bb|||\u00bb custom_padding__hover=\u00bb|||\u00bb][et_pb_contact_form email=\u00bbinfo@cureclcn4.org\u00bb success_message=\u00bbGracias por ponerte en contacto con nosotros. 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_module_preset=\u00bbdefault\u00bb background_color=\u00bbrgba(255,255,255,0.2)\u00bb custom_margin=\u00bb|6px||6px|false|false\u00bb custom_padding=\u00bb8px|8px|8px|8px|false|false\u00bb follow_button=\u00bboff\u00bb url_new_window=\u00bbon\u00bb]linkedin[\/et_pb_social_media_follow_network][\/et_pb_social_media_follow][\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Recomendaciones para la vigilancia sanitaria y las terapias dirigidasActualmente, no se conoce ninguna cura para la CLCN4. Sin embargo, las intervenciones tempranas y los programas educativos pueden maximizar el aprendizaje y el desarrollo social, y los medicamentos pueden ayudar a controlar los s\u00edntomas. El tratamiento agresivo del trastorno convulsivo es especialmente importante para maximizar los [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-2108","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/pages\/2108","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/comments?post=2108"}],"version-history":[{"count":4,"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/pages\/2108\/revisions"}],"predecessor-version":[{"id":3163,"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/pages\/2108\/revisions\/3163"}],"wp:attachment":[{"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/media?parent=2108"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}