{"id":2978,"date":"2022-09-29T13:04:16","date_gmt":"2022-09-29T13:04:16","guid":{"rendered":"https:\/\/cureclcn4.org\/recursos\/"},"modified":"2022-09-29T13:04:16","modified_gmt":"2022-09-29T13:04:16","slug":"recursos","status":"publish","type":"page","link":"https:\/\/cureclcn4.org\/es\/recursos\/","title":{"rendered":"Recursos"},"content":{"rendered":"

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Recursos – para profesionales<\/h1>\n

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En Cure CLCN4 estamos trabajando para proporcionar a la comunidad cient\u00edfica las herramientas necesarias para avanzar en la investigaci\u00f3n del trastorno del neurodesarrollo relacionado con el CLCN4. A continuaci\u00f3n tenemos una lista de recursos que incluyen herramientas de investigaci\u00f3n, recursos informativos y grabaciones de conferencias cient\u00edficas anteriores<\/strong>.\u00a0<\/p>\n

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Herramientas de investigaci\u00f3n<\/h2>\n

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Cure CLCN4 est\u00e1 financiando la generaci\u00f3n de dos modelos de rata Clcn4 (un modelo Clcn4<\/em> KO y un PM Clcn4<\/em> A549V) que estar\u00e1n disponibles libremente para la comunidad cient\u00edfica una vez generados. M\u00e1s detalles pronto!<\/p>\n

[\/et_pb_blurb][et_pb_blurb title=\u00bbC\u00e9lulas iPSC derivadas de pacientes\u00bb content_max_width=\u00bb800px\u00bb _builder_version=\u00bb4.17.4″ header_font=\u00bb|700|||||||\u00bb header_font_size=\u00bb16px\u00bb header_line_height=\u00bb2em\u00bb body_line_height=\u00bb2em\u00bb global_colors_info=\u00bb{}\u00bb]<\/p>\n

Estamos muy agradecidos a la fundaci\u00f3n Simons Searchlight por la generaci\u00f3n de c\u00e9lulas madre pluripotentes inducidas (iPSCs) a partir de muestras de sangre proporcionadas por familias afectadas por CLCN4 que se han inscrito en el registro de Simons Searchlight<\/a>. Una lista de las pr\u00f3ximas l\u00edneas celulares estar\u00e1 disponible pronto aqu\u00ed.\u00a0<\/p>\n

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Recursos cl\u00ednicos<\/h2>\n

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Esta publicaci\u00f3n de GeneReview<\/a> contiene informaci\u00f3n actualizada sobre el trastorno del neurodesarrollo relacionado con el CLCN4, incluyendo el diagn\u00f3stico, las caracter\u00edsticas cl\u00ednicas, el manejo y los recursos.<\/p>\n

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Conferencias pasadas<\/h2>\n

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Nuestra primera conferencia cient\u00edfica tuvo lugar el pasado mes de mayo de 2022, y cont\u00f3 con una serie de fant\u00e1sticos ponentes y charlas informativas sobre las afecciones relacionadas con el CLCN4, las enfermedades raras, los canales i\u00f3nicos, la neurociencia y el descubrimiento de f\u00e1rmacos. Las grabaciones de la conferencia est\u00e1n disponibles aqu\u00ed<\/a>.\u00a0<\/p>\n

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Ponte en contacto. Participa.<\/h2>\n

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Recursos – para profesionalesEn Cure CLCN4 estamos trabajando para proporcionar a la comunidad cient\u00edfica las herramientas necesarias para avanzar en la investigaci\u00f3n del trastorno del neurodesarrollo relacionado con el CLCN4. A continuaci\u00f3n tenemos una lista de recursos que incluyen herramientas de investigaci\u00f3n, recursos informativos y grabaciones de conferencias cient\u00edficas anteriores.\u00a0Herramientas de investigaci\u00f3nCure CLCN4 est\u00e1 financiando […]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-2978","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/pages\/2978","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/comments?post=2978"}],"version-history":[{"count":2,"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/pages\/2978\/revisions"}],"predecessor-version":[{"id":2980,"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/pages\/2978\/revisions\/2980"}],"wp:attachment":[{"href":"https:\/\/cureclcn4.org\/es\/wp-json\/wp\/v2\/media?parent=2978"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}