{"id":7512,"date":"2026-01-06T19:19:19","date_gmt":"2026-01-06T19:19:19","guid":{"rendered":"https:\/\/cureclcn4.org\/mision-de-investigacion\/"},"modified":"2026-01-06T19:25:44","modified_gmt":"2026-01-06T19:25:44","slug":"mision-de-investigacion","status":"publish","type":"page","link":"https:\/\/cureclcn4.org\/es\/mision-de-investigacion\/","title":{"rendered":"Misi\u00f3n de investigaci\u00f3n"},"content":{"rendered":"<p>[et_pb_section fb_built=\u00bb1&#8243; admin_label=\u00bbVideo\u00bb _builder_version=\u00bb4.16&#8243; background_color=\u00bb#3a897e\u00bb custom_padding=\u00bb0|1px|0|0px|false|false\u00bb collapsed=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_row _builder_version=\u00bb4.16&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb4.16&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_divider show_divider=\u00bboff\u00bb _builder_version=\u00bb4.16&#8243; _module_preset=\u00bbdefault\u00bb global_colors_info=\u00bb{}\u00bb][\/et_pb_divider][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00bb1&#8243; admin_label=\u00bbHeader\u00bb _builder_version=\u00bb4.16&#8243; background_color=\u00bb#f7f9f9&#8243; parallax=\u00bbon\u00bb collapsed=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb][et_pb_row column_structure=\u00bb1_2,1_2&#8243; _builder_version=\u00bb4.27.4&#8243; custom_padding=\u00bb0px|||||\u00bb hover_enabled=\u00bb0&#8243; global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb sticky_enabled=\u00bb0&#8243; make_equal=\u00bbon\u00bb][et_pb_column type=\u00bb1_2&#8243; _builder_version=\u00bb4.16&#8243; custom_padding=\u00bb80px||40px|\u00bb custom_padding_tablet=\u00bb0px||\u00bb custom_padding_phone=\u00bb\u00bb custom_padding_last_edited=\u00bbon|tablet\u00bb hover_enabled=\u00bb0&#8243; global_colors_info=\u00bb{}\u00bb padding_tablet=\u00bb0px||\u00bb padding_last_edited=\u00bbon|tablet\u00bb custom_padding__hover=\u00bb|||\u00bb padding_phone=\u00bb0px||\u00bb theme_builder_area=\u00bbpost_content\u00bb sticky_enabled=\u00bb0&#8243;][et_pb_text _builder_version=\u00bb4.27.4&#8243; text_font=\u00bb||||||||\u00bb text_line_height=\u00bb2em\u00bb header_font=\u00bbFaustina|600|||||||\u00bb header_text_color=\u00bb#0e7162&#8243; header_font_size=\u00bb60px\u00bb header_line_height=\u00bb1.3em\u00bb custom_margin=\u00bb0px||||false|false\u00bb hover_enabled=\u00bb0&#8243; header_font_size_tablet=\u00bb50px\u00bb header_font_size_phone=\u00bb40px\u00bb header_font_size_last_edited=\u00bbon|phone\u00bb global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb sticky_enabled=\u00bb0&#8243; min_height=\u00bb69px\u00bb]<\/p>\n<h1>Misi\u00f3n de investigaci\u00f3n<\/h1>\n<p>[\/et_pb_text][et_pb_text _builder_version=\u00bb4.27.4&#8243; text_font=\u00bb||||||||\u00bb text_font_size=\u00bb18px\u00bb text_line_height=\u00bb1.8em\u00bb header_font=\u00bbFaustina||||||||\u00bb header_text_color=\u00bb#0e7162&#8243; header_font_size=\u00bb60px\u00bb header_line_height=\u00bb1.3em\u00bb custom_margin=\u00bb||17px|||\u00bb hover_enabled=\u00bb0&#8243; global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb sticky_enabled=\u00bb0&#8243;]<\/p>\n<p style=\"text-align: justify;\">La afecci\u00f3n relacionada con el CLCN4 es rara, compleja y a\u00fan poco conocida. Las familias viven con preguntas sin respuesta, orientaci\u00f3n limitada e incertidumbre sobre lo que les espera. <\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=\u00bb4.27.4&#8243; text_font=\u00bb||||||||\u00bb text_font_size=\u00bb24px\u00bb text_line_height=\u00bb2em\u00bb header_font=\u00bbFaustina||||||||\u00bb header_text_color=\u00bb#0e7162&#8243; header_font_size=\u00bb60px\u00bb header_line_height=\u00bb1.3em\u00bb custom_margin=\u00bb||17px|||\u00bb hover_enabled=\u00bb0&#8243; global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb sticky_enabled=\u00bb0&#8243;]<\/p>\n<p style=\"text-align: justify;\"><strong>Cure CLCN4 est\u00e1 aqu\u00ed para cambiar eso.<\/strong><\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=\u00bb4.27.4&#8243; text_font=\u00bb||||||||\u00bb text_font_size=\u00bb18px\u00bb text_line_height=\u00bb1.8em\u00bb header_font=\u00bbFaustina||||||||\u00bb header_text_color=\u00bb#0e7162&#8243; header_font_size=\u00bb60px\u00bb header_line_height=\u00bb1.3em\u00bb custom_margin=\u00bb||17px|||\u00bb hover_enabled=\u00bb0&#8243; global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb sticky_enabled=\u00bb0&#8243;]<\/p>\n<p style=\"text-align: justify;\">Impulsamos la investigaci\u00f3n y las asociaciones mundiales necesarias para comprender el CLCN4 y construir el camino hacia futuros tratamientos. Nuestra misi\u00f3n es convertir la ciencia emergente en un cambio significativo para las familias de todo el mundo. <\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00bb1_2&#8243; _builder_version=\u00bb4.27.4&#8243; custom_padding=\u00bb|||\u00bb hover_enabled=\u00bb0&#8243; global_colors_info=\u00bb{}\u00bb custom_padding__hover=\u00bb|||\u00bb theme_builder_area=\u00bbpost_content\u00bb sticky_enabled=\u00bb0&#8243;][et_pb_image src=\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2025\/11\/Research_Mission_hero_section-scaled.png\u00bb show_bottom_space=\u00bboff\u00bb align_tablet=\u00bbcenter\u00bb align_phone=\u00bb\u00bb align_last_edited=\u00bbon|tablet\u00bb _builder_version=\u00bb4.27.4&#8243; custom_margin=\u00bb0px||||false|false\u00bb animation_style=\u00bbslide\u00bb animation_direction=\u00bbright\u00bb animation_intensity_slide=\u00bb2%\u00bb hover_enabled=\u00bb0&#8243; global_colors_info=\u00bb{}\u00bb theme_builder_area=\u00bbpost_content\u00bb 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header_2_text_color=\u00bb#0e7162&#8243; header_2_font_size=\u00bb42px\u00bb header_2_line_height=\u00bb1.4em\u00bb text_orientation=\u00bbcenter\u00bb max_width=\u00bb850px\u00bb module_alignment=\u00bbcenter\u00bb text_font_size_tablet=\u00bb\u00bb text_font_size_phone=\u00bb17px\u00bb text_font_size_last_edited=\u00bbon|phone\u00bb header_2_font_size_tablet=\u00bb32px\u00bb header_2_font_size_phone=\u00bb22px\u00bb header_2_font_size_last_edited=\u00bbon|desktop\u00bb locked=\u00bboff\u00bb global_colors_info=\u00bb{}\u00bb]<\/p>\n<h2><span style=\"font-size: xx-large;\">Pretendemos hacerlo&#8230;<\/span><\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=\u00bbon|phone\u00bb _builder_version=\u00bb4.16&#8243; background_color=\u00bb#ffffff\u00bb max_width=\u00bb1200px\u00bb custom_padding=\u00bb29px|80px|28px|80px|false|false\u00bb custom_padding_tablet=\u00bb|80px||80px|false|true\u00bb custom_padding_phone=\u00bb40px|30px||30px||true\u00bb box_shadow_style=\u00bbpreset3&#8243; box_shadow_vertical=\u00bb40px\u00bb box_shadow_blur=\u00bb100px\u00bb box_shadow_spread=\u00bb-30px\u00bb box_shadow_color=\u00bbrgba(0,0,0,0.22)\u00bb use_custom_width=\u00bbon\u00bb custom_width_px=\u00bb1200px\u00bb global_colors_info=\u00bb{}\u00bb][et_pb_column type=\u00bb4_4&#8243; _builder_version=\u00bb4.16&#8243; custom_padding=\u00bb|||\u00bb global_colors_info=\u00bb{}\u00bb custom_padding__hover=\u00bb|||\u00bb][et_pb_blurb content_max_width=\u00bb800px\u00bb _builder_version=\u00bb4.27.4&#8243; header_font=\u00bb|700|||||||\u00bb header_font_size=\u00bb16px\u00bb header_line_height=\u00bb2em\u00bb body_font_size=\u00bb17px\u00bb body_line_height=\u00bb2em\u00bb global_colors_info=\u00bb{}\u00bb]<\/p>\n<ul>\n<li style=\"text-align: justify;\">Proporcionar a la comunidad cient\u00edfica y cl\u00ednica las <a href=\"https:\/\/cureclcn4.org\/es\/herramientas-de-investigacion\/\"><strong>herramientas de investigaci\u00f3n<\/strong><\/a> para avanzar en nuestra comprensi\u00f3n de las afecciones <em>relacionadas con CLCN4<\/em>.<\/li>\n<\/ul>\n<ul style=\"text-align: justify;\">\n<li><strong>Identificar y <a href=\"https:\/\/cureclcn4.org\/grant-calls\/\">financiar<\/a> proyectos de investigaci\u00f3n<\/strong> con potencial para contribuir al conocimiento actual de la biolog\u00eda y los patomecanismos implicados en la afecci\u00f3n<em> relacionada con CLCN4<\/em>.<\/li>\n<\/ul>\n<ul style=\"text-align: justify;\">\n<li>Ayudar a establecer una <strong><a href=\"https:\/\/cureclcn4.org\/es\/red-de-investigacion-clcn4\/\">red internacional<\/a> de investigadores y cl\u00ednicos<\/strong> implicados en la investigaci\u00f3n sobre la afecci\u00f3n <em>relacionada con el CLCN4<\/em> y\/o el tratamiento de personas con esta afecci\u00f3n.<\/li>\n<\/ul>\n<ul style=\"text-align: justify;\">\n<li>Apoyar la <strong>identificaci\u00f3n de pacientes<\/strong> con una afecci\u00f3n <em>relacionada con el CLCN4<\/em> trabajando con laboratorios gen\u00e9ticos, tanto en el Reino Unido como en el extranjero, para a\u00f1adir <em>el CLCN4<\/em> a los paneles de pruebas gen\u00e9ticas y proporcionar a las familias los recursos disponibles.<\/li>\n<\/ul>\n<ul style=\"text-align: justify;\">\n<li>Apoyar los esfuerzos para establecer y mantener un <strong> <a href=\"https:\/\/cureclcn4.org\/es\/registro-de-pacientes\/\">registro oficial de pacientes<\/a> <em>de CLCN4<\/em><\/strong>, con el objetivo \u00faltimo de crear un conjunto de datos de historia natural.<\/li>\n<\/ul>\n<ul>\n<li style=\"text-align: justify;\"><strong>Sensibilizar<\/strong> a la comunidad cient\u00edfica y m\u00e9dica sobre la afecci\u00f3n <em>relacionada con el CLCN4<\/em> y promover el compromiso de la investigaci\u00f3n con esta afecci\u00f3n.<\/li>\n<\/ul>\n<p>[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00bb1_2,1_2&#8243; custom_padding_last_edited=\u00bbon|phone\u00bb _builder_version=\u00bb4.16&#8243; 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