{"id":3308,"date":"2023-01-09T13:39:11","date_gmt":"2023-01-09T13:39:11","guid":{"rendered":"https:\/\/cureclcn4.org\/lequipe\/"},"modified":"2025-11-18T10:47:31","modified_gmt":"2025-11-18T10:47:31","slug":"lequipe","status":"publish","type":"page","link":"https:\/\/cureclcn4.org\/fr\/lequipe\/","title":{"rendered":"L&rsquo;\u00e9quipe"},"content":{"rendered":"<p>[et_pb_section fb_built=\u00a0\u00bb1&Prime; admin_label=\u00a0\u00bbVideo\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; background_color=\u00a0\u00bb#3a897e\u00a0\u00bb custom_padding=\u00a0\u00bb0|1px|0|0px|false|false\u00a0\u00bb collapsed=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_divider show_divider=\u00a0\u00bboff\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_divider][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1&Prime; admin_label=\u00a0\u00bbHeader\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; background_color=\u00a0\u00bb#f7f9f9&Prime; parallax=\u00a0\u00bbon\u00a0\u00bb collapsed=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row column_structure=\u00a0\u00bb1_2,1_2&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb0px|||||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb80px||40px|\u00a0\u00bb custom_padding_tablet=\u00a0\u00bb0px||\u00a0\u00bb custom_padding_phone=\u00a0\u00bb\u00a0\u00bb custom_padding_last_edited=\u00a0\u00bbon|tablet\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb padding_tablet=\u00a0\u00bb0px||\u00a0\u00bb padding_last_edited=\u00a0\u00bbon|tablet\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb padding_phone=\u00a0\u00bb0px||\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4&Prime; text_font=\u00a0\u00bb||||||||\u00a0\u00bb text_line_height=\u00a0\u00bb2em\u00a0\u00bb header_font=\u00a0\u00bbFaustina|600|||||||\u00a0\u00bb header_text_color=\u00a0\u00bb#0e7162&Prime; header_font_size=\u00a0\u00bb60px\u00a0\u00bb header_line_height=\u00a0\u00bb1.3em\u00a0\u00bb custom_margin=\u00a0\u00bb-19px|||||\u00a0\u00bb header_font_size_tablet=\u00a0\u00bb50px\u00a0\u00bb header_font_size_phone=\u00a0\u00bb40px\u00a0\u00bb header_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h1>Rencontrez l&rsquo;\u00e9quipe<\/h1>\n<p>[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.4&Prime; text_font=\u00a0\u00bb||||||||\u00a0\u00bb text_font_size=\u00a0\u00bb18px\u00a0\u00bb text_line_height=\u00a0\u00bb2em\u00a0\u00bb header_font=\u00a0\u00bbFaustina||||||||\u00a0\u00bb header_text_color=\u00a0\u00bb#0e7162&Prime; header_font_size=\u00a0\u00bb60px\u00a0\u00bb header_line_height=\u00a0\u00bb1.3em\u00a0\u00bb custom_margin=\u00a0\u00bb||17px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p>Cure CLCN4 est dirig\u00e9 par une \u00e9quipe d\u00e9vou\u00e9e compos\u00e9e de parents, de scientifiques et de professionnels qui travaillent ensemble pour faire avancer la recherche et soutenir les familles touch\u00e9es par une maladie li\u00e9e au g\u00e8ne CLCN4.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=\u00a0\u00bb4.27.4&Prime; text_font=\u00a0\u00bb||||||||\u00a0\u00bb text_line_height=\u00a0\u00bb2em\u00a0\u00bb header_font=\u00a0\u00bbFaustina||||||||\u00a0\u00bb header_text_color=\u00a0\u00bb#0e7162&Prime; header_font_size=\u00a0\u00bb60px\u00a0\u00bb header_line_height=\u00a0\u00bb1.3em\u00a0\u00bb custom_margin=\u00a0\u00bb||17px|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p style=\"text-align: justify;\">Nos administrateurs assurent la gouvernance et la direction strat\u00e9gique, tandis que nos conseillers scientifiques apportent leur expertise de niveau mondial en g\u00e9n\u00e9tique, neurosciences et recherche sur les maladies rares. Les activit\u00e9s de l&rsquo;organisation caritative sont coordonn\u00e9es par notre responsable de la recherche et directeur de l&rsquo;organisation caritative, qui supervise le programme scientifique et les op\u00e9rations quotidiennes, veillant \u00e0 ce que notre mission se traduise par des progr\u00e8s concrets pour la communaut\u00e9 CLCN4. <\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_2&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2025\/11\/The_team-1-scaled.png\u00a0\u00bb title_text=\u00a0\u00bbThe_team\u00a0\u00bb show_bottom_space=\u00a0\u00bboff\u00a0\u00bb align_tablet=\u00a0\u00bbcenter\u00a0\u00bb align_phone=\u00a0\u00bb\u00a0\u00bb align_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; custom_margin=\u00a0\u00bb40px||||false|false\u00a0\u00bb animation_style=\u00a0\u00bbslide\u00a0\u00bb animation_direction=\u00a0\u00bbright\u00a0\u00bb animation_intensity_slide=\u00a0\u00bb2%\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1&Prime; admin_label=\u00a0\u00bbGet Involved\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; background_color=\u00a0\u00bb#f7f9f9&Prime; background_image=\u00a0\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2020\/08\/charity-13.png\u00a0\u00bb parallax=\u00a0\u00bbon\u00a0\u00bb custom_padding=\u00a0\u00bb0|1px|7px|0px|false|false\u00a0\u00bb use_custom_width=\u00a0\u00bbon\u00a0\u00bb custom_width_px=\u00a0\u00bb1200px\u00a0\u00bb custom_width_px__hover=\u00a0\u00bb1080px\u00a0\u00bb custom_width_px__hover_enabled=\u00a0\u00bb1080px\u00a0\u00bb custom_width_percent__hover=\u00a0\u00bb80%\u00a0\u00bb custom_width_percent__hover_enabled=\u00a0\u00bb80%\u00a0\u00bb collapsed=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb gutter_width__hover=\u00a0\u00bb3&Prime; gutter_width__hover_enabled=\u00a0\u00bb3&Prime; parallax_1__hover=\u00a0\u00bboff\u00a0\u00bb parallax_1__hover_enabled=\u00a0\u00bboff\u00a0\u00bb parallax_2__hover=\u00a0\u00bboff\u00a0\u00bb parallax_2__hover_enabled=\u00a0\u00bboff\u00a0\u00bb parallax_3__hover=\u00a0\u00bboff\u00a0\u00bb parallax_3__hover_enabled=\u00a0\u00bboff\u00a0\u00bb parallax_method_1__hover=\u00a0\u00bbon\u00a0\u00bb parallax_method_1__hover_enabled=\u00a0\u00bbon\u00a0\u00bb parallax_method_2__hover=\u00a0\u00bbon\u00a0\u00bb parallax_method_2__hover_enabled=\u00a0\u00bbon\u00a0\u00bb parallax_method_3__hover=\u00a0\u00bbon\u00a0\u00bb parallax_method_3__hover_enabled=\u00a0\u00bbon\u00a0\u00bb use_background_color_gradient__hover=\u00a0\u00bboff\u00a0\u00bb use_background_color_gradient__hover_enabled=\u00a0\u00bboff\u00a0\u00bb background_color_gradient_start__hover=\u00a0\u00bb#2b87da\u00a0\u00bb background_color_gradient_start__hover_enabled=\u00a0\u00bb#2b87da\u00a0\u00bb background_color_gradient_end__hover=\u00a0\u00bb#29c4a9&Prime; background_color_gradient_end__hover_enabled=\u00a0\u00bb#29c4a9&Prime; background_color_gradient_type__hover=\u00a0\u00bblinear\u00a0\u00bb background_color_gradient_type__hover_enabled=\u00a0\u00bblinear\u00a0\u00bb background_color_gradient_direction__hover=\u00a0\u00bb180deg\u00a0\u00bb background_color_gradient_direction__hover_enabled=\u00a0\u00bb180deg\u00a0\u00bb background_color_gradient_direction_radial__hover=\u00a0\u00bbcenter\u00a0\u00bb background_color_gradient_direction_radial__hover_enabled=\u00a0\u00bbcenter\u00a0\u00bb background_color_gradient_start_position__hover=\u00a0\u00bb0%\u00a0\u00bb background_color_gradient_start_position__hover_enabled=\u00a0\u00bb0%\u00a0\u00bb background_color_gradient_end_position__hover=\u00a0\u00bb100%\u00a0\u00bb background_color_gradient_end_position__hover_enabled=\u00a0\u00bb100%\u00a0\u00bb background_color_gradient_overlays_image__hover=\u00a0\u00bboff\u00a0\u00bb background_color_gradient_overlays_image__hover_enabled=\u00a0\u00bboff\u00a0\u00bb parallax__hover=\u00a0\u00bboff\u00a0\u00bb parallax__hover_enabled=\u00a0\u00bboff\u00a0\u00bb parallax_method__hover=\u00a0\u00bbon\u00a0\u00bb parallax_method__hover_enabled=\u00a0\u00bbon\u00a0\u00bb background_size__hover=\u00a0\u00bbcover\u00a0\u00bb background_size__hover_enabled=\u00a0\u00bbcover\u00a0\u00bb background_position__hover=\u00a0\u00bbcenter\u00a0\u00bb background_position__hover_enabled=\u00a0\u00bbcenter\u00a0\u00bb background_repeat__hover=\u00a0\u00bbno-repeat\u00a0\u00bb background_repeat__hover_enabled=\u00a0\u00bbno-repeat\u00a0\u00bb background_blend__hover=\u00a0\u00bbnormal\u00a0\u00bb background_blend__hover_enabled=\u00a0\u00bbnormal\u00a0\u00bb allow_player_pause__hover=\u00a0\u00bboff\u00a0\u00bb allow_player_pause__hover_enabled=\u00a0\u00bboff\u00a0\u00bb background_video_pause_outside_viewport__hover=\u00a0\u00bbon\u00a0\u00bb background_video_pause_outside_viewport__hover_enabled=\u00a0\u00bbon\u00a0\u00bb inner_shadow__hover=\u00a0\u00bboff\u00a0\u00bb inner_shadow__hover_enabled=\u00a0\u00bboff\u00a0\u00bb make_fullwidth__hover=\u00a0\u00bboff\u00a0\u00bb make_fullwidth__hover_enabled=\u00a0\u00bboff\u00a0\u00bb use_custom_width__hover=\u00a0\u00bboff\u00a0\u00bb use_custom_width__hover_enabled=\u00a0\u00bboff\u00a0\u00bb width_unit__hover=\u00a0\u00bbon\u00a0\u00bb width_unit__hover_enabled=\u00a0\u00bbon\u00a0\u00bb make_equal__hover=\u00a0\u00bboff\u00a0\u00bb make_equal__hover_enabled=\u00a0\u00bboff\u00a0\u00bb use_custom_gutter__hover=\u00a0\u00bboff\u00a0\u00bb use_custom_gutter__hover_enabled=\u00a0\u00bboff\u00a0\u00bb border_radii__hover=\u00a0\u00bbon||||\u00a0\u00bb border_radii__hover_enabled=\u00a0\u00bbon||||\u00a0\u00bb box_shadow_style__hover=\u00a0\u00bbnone\u00a0\u00bb box_shadow_style__hover_enabled=\u00a0\u00bbnone\u00a0\u00bb box_shadow_color__hover=\u00a0\u00bbrgba(0,0,0,0.3)\u00a0\u00bb box_shadow_color__hover_enabled=\u00a0\u00bbrgba(0,0,0,0.3)\u00a0\u00bb max_width__hover=\u00a0\u00bb100%\u00a0\u00bb max_width__hover_enabled=\u00a0\u00bb100%\u00a0\u00bb filter_hue_rotate__hover=\u00a0\u00bb0deg\u00a0\u00bb filter_hue_rotate__hover_enabled=\u00a0\u00bb0deg\u00a0\u00bb filter_saturate__hover=\u00a0\u00bb100%\u00a0\u00bb filter_saturate__hover_enabled=\u00a0\u00bb100%\u00a0\u00bb filter_brightness__hover=\u00a0\u00bb100%\u00a0\u00bb filter_brightness__hover_enabled=\u00a0\u00bb100%\u00a0\u00bb filter_contrast__hover=\u00a0\u00bb100%\u00a0\u00bb filter_contrast__hover_enabled=\u00a0\u00bb100%\u00a0\u00bb filter_invert__hover=\u00a0\u00bb0%\u00a0\u00bb filter_invert__hover_enabled=\u00a0\u00bb0%\u00a0\u00bb filter_sepia__hover=\u00a0\u00bb0%\u00a0\u00bb filter_sepia__hover_enabled=\u00a0\u00bb0%\u00a0\u00bb filter_opacity__hover=\u00a0\u00bb100%\u00a0\u00bb filter_opacity__hover_enabled=\u00a0\u00bb100%\u00a0\u00bb filter_blur__hover=\u00a0\u00bb0px\u00a0\u00bb filter_blur__hover_enabled=\u00a0\u00bb0px\u00a0\u00bb mix_blend_mode__hover=\u00a0\u00bbnormal\u00a0\u00bb mix_blend_mode__hover_enabled=\u00a0\u00bbnormal\u00a0\u00bb animation_style__hover=\u00a0\u00bbnone\u00a0\u00bb animation_style__hover_enabled=\u00a0\u00bbnone\u00a0\u00bb animation_repeat__hover=\u00a0\u00bbonce\u00a0\u00bb animation_repeat__hover_enabled=\u00a0\u00bbonce\u00a0\u00bb animation_direction__hover=\u00a0\u00bbcenter\u00a0\u00bb animation_direction__hover_enabled=\u00a0\u00bbcenter\u00a0\u00bb animation_duration__hover=\u00a0\u00bb1000ms\u00a0\u00bb animation_duration__hover_enabled=\u00a0\u00bb1000ms\u00a0\u00bb animation_delay__hover=\u00a0\u00bb0ms\u00a0\u00bb animation_delay__hover_enabled=\u00a0\u00bb0ms\u00a0\u00bb animation_intensity_slide__hover=\u00a0\u00bb50%\u00a0\u00bb animation_intensity_slide__hover_enabled=\u00a0\u00bb50%\u00a0\u00bb animation_intensity_zoom__hover=\u00a0\u00bb50%\u00a0\u00bb animation_intensity_zoom__hover_enabled=\u00a0\u00bb50%\u00a0\u00bb animation_intensity_flip__hover=\u00a0\u00bb50%\u00a0\u00bb animation_intensity_flip__hover_enabled=\u00a0\u00bb50%\u00a0\u00bb animation_intensity_fold__hover=\u00a0\u00bb50%\u00a0\u00bb animation_intensity_fold__hover_enabled=\u00a0\u00bb50%\u00a0\u00bb animation_intensity_roll__hover=\u00a0\u00bb50%\u00a0\u00bb animation_intensity_roll__hover_enabled=\u00a0\u00bb50%\u00a0\u00bb animation_starting_opacity__hover=\u00a0\u00bb0%\u00a0\u00bb animation_starting_opacity__hover_enabled=\u00a0\u00bb0%\u00a0\u00bb animation_speed_curve__hover=\u00a0\u00bbease-in-out\u00a0\u00bb animation_speed_curve__hover_enabled=\u00a0\u00bbease-in-out\u00a0\u00bb hover_transition_duration__hover=\u00a0\u00bb300ms\u00a0\u00bb hover_transition_duration__hover_enabled=\u00a0\u00bb300ms\u00a0\u00bb hover_transition_delay__hover=\u00a0\u00bb0ms\u00a0\u00bb hover_transition_delay__hover_enabled=\u00a0\u00bb0ms\u00a0\u00bb hover_transition_speed_curve__hover=\u00a0\u00bbease\u00a0\u00bb hover_transition_speed_curve__hover_enabled=\u00a0\u00bbease\u00a0\u00bb inner_max_width__hover=\u00a0\u00bb1080px\u00a0\u00bb inner_max_width__hover_enabled=\u00a0\u00bb1080px\u00a0\u00bb background_color_gradient_stops__hover=\u00a0\u00bb#2b87da 0%|#29c4a9 100%\u00a0\u00bb][et_pb_row custom_padding_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; background_color=\u00a0\u00bb#ffffff\u00a0\u00bb max_width=\u00a0\u00bb1200px\u00a0\u00bb custom_padding=\u00a0\u00bb40px|80px|27px|80px|false|true\u00a0\u00bb custom_padding_tablet=\u00a0\u00bb\u00a0\u00bb custom_padding_phone=\u00a0\u00bb|30px||30px||true\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3&Prime; box_shadow_vertical=\u00a0\u00bb40px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb100px\u00a0\u00bb box_shadow_spread=\u00a0\u00bb-30px\u00a0\u00bb box_shadow_color=\u00a0\u00bbrgba(0,0,0,0.22)\u00a0\u00bb use_custom_width=\u00a0\u00bbon\u00a0\u00bb custom_width_px=\u00a0\u00bb1200px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4&Prime; text_font=\u00a0\u00bbFaustina||||||||\u00a0\u00bb text_font_size=\u00a0\u00bb24px\u00a0\u00bb text_line_height=\u00a0\u00bb2em\u00a0\u00bb link_font=\u00a0\u00bb|700|||||||\u00a0\u00bb link_text_color=\u00a0\u00bb#26c699&Prime; header_font=\u00a0\u00bb||||||||\u00a0\u00bb header_2_font=\u00a0\u00bbFaustina|600|||||||\u00a0\u00bb header_2_text_color=\u00a0\u00bb#0e7162&Prime; header_2_font_size=\u00a0\u00bb42px\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.4em\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb max_width=\u00a0\u00bb850px\u00a0\u00bb module_alignment=\u00a0\u00bbcenter\u00a0\u00bb text_font_size_tablet=\u00a0\u00bb\u00a0\u00bb text_font_size_phone=\u00a0\u00bb17px\u00a0\u00bb text_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_2_font_size_tablet=\u00a0\u00bb32px\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb22px\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h2>Conseil d&rsquo;administration<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_3,1_3,1_3&Prime; custom_padding_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; background_color=\u00a0\u00bb#ffffff\u00a0\u00bb max_width=\u00a0\u00bb1200px\u00a0\u00bb custom_padding=\u00a0\u00bb29px|80px|28px|80px|false|false\u00a0\u00bb custom_padding_tablet=\u00a0\u00bb|80px||80px|false|true\u00a0\u00bb custom_padding_phone=\u00a0\u00bb40px|30px||30px||true\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3&Prime; box_shadow_vertical=\u00a0\u00bb40px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb100px\u00a0\u00bb box_shadow_spread=\u00a0\u00bb-30px\u00a0\u00bb box_shadow_color=\u00a0\u00bbrgba(0,0,0,0.22)\u00a0\u00bb use_custom_width=\u00a0\u00bbon\u00a0\u00bb custom_width_px=\u00a0\u00bb1200px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_3&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2025\/11\/Peter_New_Headshot.png\u00a0\u00bb title_text=\u00a0\u00bbPeter_New_Headshot\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb max_width=\u00a0\u00bb90%\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][et_pb_toggle title=\u00a0\u00bbPETER TRILL\u00a0\u00bb closed_toggle_background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_text_color=\u00a0\u00bb#0f7162&Prime; title_level=\u00a0\u00bbh4&Prime; title_font=\u00a0\u00bb|700|||||||\u00a0\u00bb title_text_align=\u00a0\u00bbcenter\u00a0\u00bb title_font_size=\u00a0\u00bb20px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p style=\"text-align: justify;\">Peter est cofondateur de l&rsquo;association caritative britannique Cure CLCN4. Il est p\u00e8re de trois enfants g\u00e9niaux, dont le plus jeune est affect\u00e9 par la CLCN4. Il est fondateur d&rsquo;entreprise et membre du conseil d&rsquo;administration dans le secteur des biotechnologies. Il est \u00e9galement un investisseur de d\u00e9marrage et un mentor pour les fondateurs d&rsquo;entreprises de soins de sant\u00e9 et de technologie en phase de d\u00e9marrage.   <\/p>\n<p>[\/et_pb_toggle][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2025\/11\/Gina_New_Headshot.png\u00a0\u00bb title_text=\u00a0\u00bbGina_New_Headshot\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb max_width=\u00a0\u00bb90%\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][et_pb_toggle title=\u00a0\u00bbDR. GINA TAN\u00a0\u00bb closed_toggle_background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_text_color=\u00a0\u00bb#0f7162&Prime; title_level=\u00a0\u00bbh4&Prime; title_font=\u00a0\u00bb|700|||||||\u00a0\u00bb title_text_align=\u00a0\u00bbcenter\u00a0\u00bb title_font_size=\u00a0\u00bb20px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p style=\"text-align: justify;\">Gina est cofondatrice de Cure CLCN4, clinicienne m\u00e9dicale et m\u00e8re de deux filles, la plus jeune \u00e9tant atteinte de CLCN4. Elle a \u00e9tudi\u00e9 la m\u00e9decine au King&rsquo;s College de Londres et a suivi une formation dans les h\u00f4pitaux de Londres et de Bath, avec une sous-sp\u00e9cialisation en rhumatologie. Elle a suivi une formation en recherche clinique \u00e0 l&rsquo;universit\u00e9 Queen Mary de Londres.  <\/p>\n<p>[\/et_pb_toggle][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2025\/11\/Alan_New_Headshot.png\u00a0\u00bb title_text=\u00a0\u00bbAlan_New_Headshot\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb max_width=\u00a0\u00bb90%\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][et_pb_toggle title=\u00a0\u00bbDR. ALAN WISE\u00a0\u00bb closed_toggle_background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_text_color=\u00a0\u00bb#0f7162&Prime; title_level=\u00a0\u00bbh4&Prime; title_font=\u00a0\u00bb|700|||||||\u00a0\u00bb title_text_align=\u00a0\u00bbcenter\u00a0\u00bb title_font_size=\u00a0\u00bb20px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p style=\"text-align: justify;\">Alan est un administrateur de la Cure CLCN4. Il est un entrepreneur exp\u00e9riment\u00e9 et prosp\u00e8re dans le domaine de la biotechnologie et poss\u00e8de une connaissance approfondie de la d\u00e9couverte de m\u00e9dicaments. Il est actuellement PDG de Duke Street Bio. Parmi les r\u00f4les pr\u00e9c\u00e9dents, citons celui de PDG de la biotech \u00e0 succ\u00e8s IOmet Pharma, rachet\u00e9e par MSD en 2016, ainsi que des postes de direction dans le domaine de la d\u00e9couverte de m\u00e9dicaments dans une grande entreprise pharmaceutique (GlaxoSmithKline). Alan a obtenu son dipl\u00f4me et son doctorat en biochimie \u00e0 l&rsquo;universit\u00e9 de Leeds et a men\u00e9 des recherches post-doctorales \u00e0 l&rsquo;universit\u00e9 de Glasgow. Il a ensuite pass\u00e9 12 ans chez GSK, o\u00f9 il a travaill\u00e9 dans divers domaines de la d\u00e9couverte pr\u00e9clinique de m\u00e9dicaments avant de passer au secteur de la biotechnologie. Pendant son temps libre, Alan aime courir, faire de la randonn\u00e9e et du v\u00e9lo avec sa famille.      <\/p>\n<p>[\/et_pb_toggle][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_3,1_3,1_3&Prime; custom_padding_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; background_color=\u00a0\u00bb#ffffff\u00a0\u00bb max_width=\u00a0\u00bb1200px\u00a0\u00bb custom_padding=\u00a0\u00bb29px|80px|28px|80px|false|false\u00a0\u00bb custom_padding_tablet=\u00a0\u00bb|80px||80px|false|true\u00a0\u00bb custom_padding_phone=\u00a0\u00bb40px|30px||30px||true\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3&Prime; box_shadow_vertical=\u00a0\u00bb40px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb100px\u00a0\u00bb box_shadow_spread=\u00a0\u00bb-30px\u00a0\u00bb box_shadow_color=\u00a0\u00bbrgba(0,0,0,0.22)\u00a0\u00bb use_custom_width=\u00a0\u00bbon\u00a0\u00bb custom_width_px=\u00a0\u00bb1200px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_3&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2025\/11\/Alexis_New_Headshot.png\u00a0\u00bb title_text=\u00a0\u00bbAlexis_New_Headshot\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb max_width=\u00a0\u00bb90%\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][et_pb_toggle title=\u00a0\u00bbALEXIS KARIM\u00a0\u00bb closed_toggle_background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_text_color=\u00a0\u00bb#0f7162&Prime; title_level=\u00a0\u00bbh4&Prime; title_font=\u00a0\u00bb|700|||||||\u00a0\u00bb title_text_align=\u00a0\u00bbcenter\u00a0\u00bb title_font_size=\u00a0\u00bb20px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p style=\"text-align: justify;\">Alexis est membre du conseil d&rsquo;administration de Cure CLCN4. Il est \u00e9galement avocat d&rsquo;affaires au sein du cabinet d&rsquo;avocats international Bryan Cave Leighton Paisner et il est sp\u00e9cialis\u00e9 dans les transactions de capital-investissement dans le secteur des soins de sant\u00e9. Il s&rsquo;int\u00e9resse vivement \u00e0 la science et \u00e0 la m\u00e9decine et cherche souvent \u00e0 les combiner avec son r\u00f4le d&rsquo;avocat. Alexis a particip\u00e9 \u00e0 un certain nombre de transactions dans le domaine de la sant\u00e9, notamment pour des entreprises en phase de d\u00e9marrage ou en phase initiale qui op\u00e8rent dans des sous-secteurs tels que les technologies m\u00e9dicales et les produits pharmaceutiques. Alexis est titulaire d&rsquo;une ma\u00eetrise en droit du Jesus College de Cambridge. Alexis est passionn\u00e9 de sports, notamment de course \u00e0 pied, de tennis et de boxe, mais son amour pour la pratique du sport a lentement \u00e9t\u00e9 d\u00e9pass\u00e9 par son amour pour regarder ses enfants faire du sport !     <\/p>\n<p>[\/et_pb_toggle][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2025\/11\/Larry_New_Headshot.png\u00a0\u00bb title_text=\u00a0\u00bbLarry_New_Headshot\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb max_width=\u00a0\u00bb90%\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][et_pb_toggle title=\u00a0\u00bbLARRY LOUISON\u00a0\u00bb closed_toggle_background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_text_color=\u00a0\u00bb#0f7162&Prime; title_level=\u00a0\u00bbh4&Prime; title_font=\u00a0\u00bb|700|||||||\u00a0\u00bb title_text_align=\u00a0\u00bbcenter\u00a0\u00bb title_font_size=\u00a0\u00bb20px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p style=\"text-align: justify;\">Larry est un administrateur de la Cure CLCN4 et un partenaire de TC Group, bas\u00e9 au bureau de Londres. Il est membre de l&rsquo;Association of Chartered Certified Accountants et poss\u00e8de plus de 20 ans d&rsquo;exp\u00e9rience dans le domaine de la m\u00e9decine g\u00e9n\u00e9rale. \u00c9tant tr\u00e8s passionn\u00e9 par les objectifs de CureCLCN4, Larry s&rsquo;engage \u00e0 utiliser ses comp\u00e9tences et son exp\u00e9rience pour mettre en place une infrastructure financi\u00e8re solide au sein de l&rsquo;entreprise.  <\/p>\n<p>[\/et_pb_toggle][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2025\/11\/Paul_New_Headshot.png\u00a0\u00bb title_text=\u00a0\u00bbPaul_New_Headshot\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb max_width=\u00a0\u00bb90%\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][et_pb_toggle title=\u00a0\u00bbPAUL MCGUINNESS\u00a0\u00bb closed_toggle_background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_text_color=\u00a0\u00bb#0f7162&Prime; title_level=\u00a0\u00bbh4&Prime; title_font=\u00a0\u00bb|700|||||||\u00a0\u00bb title_text_align=\u00a0\u00bbcenter\u00a0\u00bb title_font_size=\u00a0\u00bb20px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p style=\"text-align: justify;\">Paul a commenc\u00e9 sa carri\u00e8re en tant que consultant en technologie chez Apple lors du lancement de l&rsquo;iPhone et de l&rsquo;App Store originaux. Il a fond\u00e9 et particip\u00e9 \u00e0 plusieurs start-ups technologiques et est passionn\u00e9 par le pouvoir de la technologie pour am\u00e9liorer la fa\u00e7on dont nous interagissons, travaillons et vivons. Paul souhaite mettre \u00e0 profit son exp\u00e9rience dans le domaine des plateformes technologiques pour mieux faire conna\u00eetre le CLCN4 et avoir un impact positif \u00e0 long terme sur les familles dont un proche est atteint de cette maladie.  <\/p>\n<p>[\/et_pb_toggle][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; background_color=\u00a0\u00bb#ffffff\u00a0\u00bb max_width=\u00a0\u00bb1200px\u00a0\u00bb custom_padding=\u00a0\u00bb40px|80px|27px|80px|false|true\u00a0\u00bb custom_padding_tablet=\u00a0\u00bb\u00a0\u00bb custom_padding_phone=\u00a0\u00bb|30px||30px||true\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3&Prime; box_shadow_vertical=\u00a0\u00bb40px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb100px\u00a0\u00bb box_shadow_spread=\u00a0\u00bb-30px\u00a0\u00bb box_shadow_color=\u00a0\u00bbrgba(0,0,0,0.22)\u00a0\u00bb use_custom_width=\u00a0\u00bbon\u00a0\u00bb custom_width_px=\u00a0\u00bb1200px\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4&Prime; text_font=\u00a0\u00bbFaustina||||||||\u00a0\u00bb text_font_size=\u00a0\u00bb24px\u00a0\u00bb text_line_height=\u00a0\u00bb2em\u00a0\u00bb link_font=\u00a0\u00bb|700|||||||\u00a0\u00bb link_text_color=\u00a0\u00bb#26c699&Prime; header_font=\u00a0\u00bb||||||||\u00a0\u00bb header_2_font=\u00a0\u00bbFaustina|600|||||||\u00a0\u00bb header_2_text_color=\u00a0\u00bb#0e7162&Prime; header_2_font_size=\u00a0\u00bb42px\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.4em\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb max_width=\u00a0\u00bb850px\u00a0\u00bb module_alignment=\u00a0\u00bbcenter\u00a0\u00bb text_font_size_tablet=\u00a0\u00bb\u00a0\u00bb text_font_size_phone=\u00a0\u00bb17px\u00a0\u00bb text_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_2_font_size_tablet=\u00a0\u00bb32px\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb22px\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h2>Responsable de la recherche et directrice des \u0153uvres caritatives<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; background_color=\u00a0\u00bb#ffffff\u00a0\u00bb max_width=\u00a0\u00bb1200px\u00a0\u00bb module_alignment=\u00a0\u00bbcenter\u00a0\u00bb custom_padding=\u00a0\u00bb29px|80px|28px|80px|false|false\u00a0\u00bb custom_padding_tablet=\u00a0\u00bb|80px||80px|false|true\u00a0\u00bb custom_padding_phone=\u00a0\u00bb40px|30px||30px||true\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3&Prime; box_shadow_vertical=\u00a0\u00bb40px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb100px\u00a0\u00bb box_shadow_spread=\u00a0\u00bb-30px\u00a0\u00bb box_shadow_color=\u00a0\u00bbrgba(0,0,0,0.22)\u00a0\u00bb use_custom_width=\u00a0\u00bbon\u00a0\u00bb custom_width_px=\u00a0\u00bb1200px\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2025\/11\/Rebeca_New_Headshot.png\u00a0\u00bb title_text=\u00a0\u00bbRebeca_New_Headshot\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb max_width=\u00a0\u00bb26%\u00a0\u00bb hover_enabled=\u00a0\u00bb0&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb max_width_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb sticky_enabled=\u00a0\u00bb0&Prime; max_width_phone=\u00a0\u00bb90%\u00a0\u00bb max_width_tablet=\u00a0\u00bb26%\u00a0\u00bb][\/et_pb_image][et_pb_toggle title=\u00a0\u00bbDR REBECA RIDINGS FIGUEROA\u00a0\u00bb closed_toggle_background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_text_color=\u00a0\u00bb#0f7162&Prime; title_level=\u00a0\u00bbh4&Prime; title_font=\u00a0\u00bb|700|||||||\u00a0\u00bb title_text_align=\u00a0\u00bbcenter\u00a0\u00bb title_font_size=\u00a0\u00bb20px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p style=\"text-align: justify;\">Rebeca est responsable de la recherche et directrice des activit\u00e9s caritatives chez Cure CLCN4. Son r\u00f4le est de contribuer \u00e0 la r\u00e9alisation des objectifs de Cure CLCN4. Elle travaille avec le conseil d&rsquo;administration pour d\u00e9velopper, fa\u00e7onner et mettre en \u0153uvre la strat\u00e9gie de recherche, la politique et la gouvernance de Cure CLCN4. Rebeca a termin\u00e9 avec succ\u00e8s un doctorat en g\u00e9n\u00e9tique \u00e0 l&rsquo;universit\u00e9 de Cambridge. Son projet portait sur la biologie cellulaire et la g\u00e9n\u00e9tique des organo\u00efdes pancr\u00e9atiques de souris. Elle est \u00e9galement titulaire d&rsquo;un master de recherche et d&rsquo;une licence en biologie cellulaire mol\u00e9culaire de l&rsquo;universit\u00e9 de York. Pendant son temps libre, Rebeca aime lire, regarder des films et faire de l&rsquo;exercice.      <\/p>\n<p>[\/et_pb_toggle][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; background_color=\u00a0\u00bb#ffffff\u00a0\u00bb max_width=\u00a0\u00bb1200px\u00a0\u00bb custom_padding=\u00a0\u00bb40px|80px|27px|80px|false|true\u00a0\u00bb custom_padding_tablet=\u00a0\u00bb\u00a0\u00bb custom_padding_phone=\u00a0\u00bb|30px||30px||true\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3&Prime; box_shadow_vertical=\u00a0\u00bb40px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb100px\u00a0\u00bb box_shadow_spread=\u00a0\u00bb-30px\u00a0\u00bb box_shadow_color=\u00a0\u00bbrgba(0,0,0,0.22)\u00a0\u00bb use_custom_width=\u00a0\u00bbon\u00a0\u00bb custom_width_px=\u00a0\u00bb1200px\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_text _builder_version=\u00a0\u00bb4.27.4&Prime; text_font=\u00a0\u00bbFaustina||||||||\u00a0\u00bb text_font_size=\u00a0\u00bb24px\u00a0\u00bb text_line_height=\u00a0\u00bb2em\u00a0\u00bb link_font=\u00a0\u00bb|700|||||||\u00a0\u00bb link_text_color=\u00a0\u00bb#26c699&Prime; header_font=\u00a0\u00bb||||||||\u00a0\u00bb header_2_font=\u00a0\u00bbFaustina|600|||||||\u00a0\u00bb header_2_text_color=\u00a0\u00bb#0e7162&Prime; header_2_font_size=\u00a0\u00bb42px\u00a0\u00bb header_2_line_height=\u00a0\u00bb1.4em\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb max_width=\u00a0\u00bb850px\u00a0\u00bb module_alignment=\u00a0\u00bbcenter\u00a0\u00bb text_font_size_tablet=\u00a0\u00bb\u00a0\u00bb text_font_size_phone=\u00a0\u00bb17px\u00a0\u00bb text_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_2_font_size_tablet=\u00a0\u00bb32px\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb22px\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<h2>Conseillers scientifiques<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=\u00a0\u00bb1_3,1_3,1_3&Prime; custom_padding_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; background_color=\u00a0\u00bb#ffffff\u00a0\u00bb max_width=\u00a0\u00bb1200px\u00a0\u00bb custom_padding=\u00a0\u00bb29px|80px|28px|80px|false|false\u00a0\u00bb custom_padding_tablet=\u00a0\u00bb|80px||80px|false|true\u00a0\u00bb custom_padding_phone=\u00a0\u00bb40px|30px||30px||true\u00a0\u00bb box_shadow_style=\u00a0\u00bbpreset3&Prime; box_shadow_vertical=\u00a0\u00bb40px\u00a0\u00bb box_shadow_blur=\u00a0\u00bb100px\u00a0\u00bb box_shadow_spread=\u00a0\u00bb-30px\u00a0\u00bb box_shadow_color=\u00a0\u00bbrgba(0,0,0,0.22)\u00a0\u00bb use_custom_width=\u00a0\u00bbon\u00a0\u00bb custom_width_px=\u00a0\u00bb1200px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb1_3&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2025\/11\/Emma_New_Headshot.png\u00a0\u00bb title_text=\u00a0\u00bbEmma_New_Headshot\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb max_width=\u00a0\u00bb90%\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][et_pb_toggle title=\u00a0\u00bbDR. EMMA PALMER\u00a0\u00bb closed_toggle_background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_text_color=\u00a0\u00bb#0f7162&Prime; title_level=\u00a0\u00bbh4&Prime; title_font=\u00a0\u00bb|700|||||||\u00a0\u00bb title_text_align=\u00a0\u00bbcenter\u00a0\u00bb title_font_size=\u00a0\u00bb16px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p style=\"text-align: justify;\">Le Dr Palmer (PhD, MBBS, FRACP, BA (Hons I) Oxon), est un clinicien scientifique au Sydney Children&rsquo;s Hospital Network &amp; University of New South Wales \u00e0 Sydney, en Australie. Elle poss\u00e8de une vaste exp\u00e9rience \u00e0 l&rsquo;interface de la g\u00e9n\u00e9tique clinique et de la g\u00e9n\u00e9tique de recherche, dirigeant des \u00e9quipes multidisciplinaires et \u00e9tablissant des collaborations internationales pour d\u00e9couvrir de nouvelles conditions g\u00e9n\u00e9tiques. Elle est le premier auteur d&rsquo;une publication d\u00e9crivant l&rsquo;impact des modifications du g\u00e8ne CLCN4 chez 52 personnes, anime les pages consacr\u00e9es au g\u00e8ne CLCN4 sur la Human Disease Gene Webseries avec le professeur Vera Kalscheuer et dirige les aspects cliniques d&rsquo;une \u00e9tude internationale visant \u00e0 mieux comprendre le spectre g\u00e9n\u00e9tique et clinique des affections li\u00e9es au CLCN4.  <\/p>\n<p>[\/et_pb_toggle][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2025\/11\/Vera_New_Headshot.png\u00a0\u00bb title_text=\u00a0\u00bbVera_New_Headshot\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb max_width=\u00a0\u00bb90%\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][et_pb_toggle title=\u00a0\u00bbDR. VERA KALSCHEUER \u00a0\u00bb closed_toggle_background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_text_color=\u00a0\u00bb#0f7162&Prime; title_level=\u00a0\u00bbh4&Prime; title_font=\u00a0\u00bb|700|||||||\u00a0\u00bb title_text_align=\u00a0\u00bbcenter\u00a0\u00bb title_font_size=\u00a0\u00bb16px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p style=\"text-align: justify;\">Le Dr Vera Kalscheuer (PhD) est une scientifique de l&rsquo;Institut Max Planck de g\u00e9n\u00e9tique mol\u00e9culaire \u00e0 Berlin, en Allemagne. Elle a obtenu son dipl\u00f4me et son doctorat en biochimie \u00e0 l&rsquo;Universit\u00e9 libre de Berlin, en Allemagne. Elle a effectu\u00e9 des recherches postdoctorales au d\u00e9partement de g\u00e9n\u00e9tique humaine de Nijmegen, aux Pays-Bas. Les travaux de Vera portent principalement sur l&rsquo;identification de nouveaux g\u00e8nes li\u00e9s aux troubles neurod\u00e9veloppementaux et sur la caract\u00e9risation mol\u00e9culaire et fonctionnelle de certains g\u00e8nes et prot\u00e9ines afin de mieux comprendre les m\u00e9canismes mol\u00e9culaires et pathologiques sous-jacents. Gr\u00e2ce \u00e0 ses recherches, elle a d\u00e9couvert et contribu\u00e9 \u00e0 l&rsquo;identification de nombreux g\u00e8nes li\u00e9s \u00e0 diverses formes de handicaps neurod\u00e9veloppementaux, dont le CLCN4, \u00e9tablissant ainsi un diagnostic mol\u00e9culaire pour les patients et leurs familles. Afin de mieux comprendre les troubles li\u00e9s \u00e0 la CLCN4, elle a men\u00e9, avec le Dr Emma Palmer et d&rsquo;autres collaborateurs, une vaste \u00e9tude sur l&rsquo;impact g\u00e9n\u00e9tique, clinique et fonctionnel des variantes de la CLCN4 r\u00e9cemment identifi\u00e9es. Vera et Emma \u00e9tudient actuellement un groupe encore plus important de patients pr\u00e9sentant des anomalies g\u00e9n\u00e9tiques li\u00e9es \u00e0 la CLCN4.      <\/p>\n<p>[\/et_pb_toggle][\/et_pb_column][et_pb_column type=\u00a0\u00bb1_3&Prime; _builder_version=\u00a0\u00bb4.16&Prime; custom_padding=\u00a0\u00bb|||\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb custom_padding__hover=\u00a0\u00bb|||\u00a0\u00bb][et_pb_image src=\u00a0\u00bbhttps:\/\/cureclcn4.org\/wp-content\/uploads\/2025\/11\/Gary_New_Headshot.png\u00a0\u00bb title_text=\u00a0\u00bbGary_New_Headshot\u00a0\u00bb align=\u00a0\u00bbcenter\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb max_width=\u00a0\u00bb90%\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_image][et_pb_toggle title=\u00a0\u00bbDR. GARY WILSON\u00a0\u00bb closed_toggle_background_color=\u00a0\u00bb#FFFFFF\u00a0\u00bb _builder_version=\u00a0\u00bb4.27.4&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb title_text_color=\u00a0\u00bb#0f7162&Prime; title_level=\u00a0\u00bbh4&Prime; title_font=\u00a0\u00bb|700|||||||\u00a0\u00bb title_text_align=\u00a0\u00bbcenter\u00a0\u00bb title_font_size=\u00a0\u00bb16px\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb]<\/p>\n<p style=\"text-align: justify;\">Le Dr. Gary Wilson a plus de 14 ans d&rsquo;exp\u00e9rience dans le financement de la recherche scientifique et dans le d\u00e9veloppement de programmes et de strat\u00e9gies de subvention. Il est actuellement chef du portefeuille scientifique de la Gatsby Charitable Foundation, o\u00f9 son r\u00f4le consiste \u00e0 d\u00e9velopper, mettre en \u0153uvre et contr\u00f4ler le financement de la recherche et les activit\u00e9s strat\u00e9giques dans les portefeuilles de neurosciences et de sciences v\u00e9g\u00e9tales de Gatsby. Avant de rejoindre Gatsby, Gary \u00e9tait conseiller en portefeuille au sein de la section de financement des neurosciences et de la sant\u00e9 mentale du Wellcome Trust. Il est titulaire d&rsquo;un BA\/MA en sciences naturelles de l&rsquo;universit\u00e9 de Cambridge et d&rsquo;un doctorat en neuropharmacologie de l&rsquo;University College London.   <\/p>\n<p>[\/et_pb_toggle][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1&Prime; admin_label=\u00a0\u00bbVideo\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; background_color=\u00a0\u00bb#3a897e\u00a0\u00bb custom_padding=\u00a0\u00bb0|1px|0|0px|false|false\u00a0\u00bb collapsed=\u00a0\u00bboff\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_row _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_column type=\u00a0\u00bb4_4&Prime; _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][et_pb_divider show_divider=\u00a0\u00bboff\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; _module_preset=\u00a0\u00bbdefault\u00a0\u00bb global_colors_info=\u00a0\u00bb{}\u00a0\u00bb][\/et_pb_divider][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1&Prime; fullwidth=\u00a0\u00bbon\u00a0\u00bb _builder_version=\u00a0\u00bb4.16&Prime; background_color=\u00a0\u00bb#f7f9f9&Prime; global_colors_info=\u00a0\u00bb{}\u00a0\u00bb use_background_color_gradient__hover=\u00a0\u00bboff\u00a0\u00bb use_background_color_gradient__hover_enabled=\u00a0\u00bboff\u00a0\u00bb background_color_gradient_start__hover=\u00a0\u00bb#2b87da\u00a0\u00bb background_color_gradient_start__hover_enabled=\u00a0\u00bb#2b87da\u00a0\u00bb background_color_gradient_end__hover=\u00a0\u00bb#29c4a9&Prime; background_color_gradient_end__hover_enabled=\u00a0\u00bb#29c4a9&Prime; background_color_gradient_type__hover=\u00a0\u00bblinear\u00a0\u00bb background_color_gradient_type__hover_enabled=\u00a0\u00bblinear\u00a0\u00bb background_color_gradient_direction__hover=\u00a0\u00bb180deg\u00a0\u00bb background_color_gradient_direction__hover_enabled=\u00a0\u00bb180deg\u00a0\u00bb background_color_gradient_direction_radial__hover=\u00a0\u00bbcenter\u00a0\u00bb background_color_gradient_direction_radial__hover_enabled=\u00a0\u00bbcenter\u00a0\u00bb background_color_gradient_start_position__hover=\u00a0\u00bb0%\u00a0\u00bb background_color_gradient_start_position__hover_enabled=\u00a0\u00bb0%\u00a0\u00bb background_color_gradient_end_position__hover=\u00a0\u00bb100%\u00a0\u00bb background_color_gradient_end_position__hover_enabled=\u00a0\u00bb100%\u00a0\u00bb background_color_gradient_overlays_image__hover=\u00a0\u00bboff\u00a0\u00bb background_color_gradient_overlays_image__hover_enabled=\u00a0\u00bboff\u00a0\u00bb parallax__hover=\u00a0\u00bboff\u00a0\u00bb parallax__hover_enabled=\u00a0\u00bboff\u00a0\u00bb parallax_method__hover=\u00a0\u00bbon\u00a0\u00bb parallax_method__hover_enabled=\u00a0\u00bbon\u00a0\u00bb background_size__hover=\u00a0\u00bbcover\u00a0\u00bb background_size__hover_enabled=\u00a0\u00bbcover\u00a0\u00bb background_position__hover=\u00a0\u00bbcenter\u00a0\u00bb background_position__hover_enabled=\u00a0\u00bbcenter\u00a0\u00bb background_repeat__hover=\u00a0\u00bbno-repeat\u00a0\u00bb background_repeat__hover_enabled=\u00a0\u00bbno-repeat\u00a0\u00bb background_blend__hover=\u00a0\u00bbnormal\u00a0\u00bb background_blend__hover_enabled=\u00a0\u00bbnormal\u00a0\u00bb allow_player_pause__hover=\u00a0\u00bboff\u00a0\u00bb allow_player_pause__hover_enabled=\u00a0\u00bboff\u00a0\u00bb background_video_pause_outside_viewport__hover=\u00a0\u00bbon\u00a0\u00bb background_video_pause_outside_viewport__hover_enabled=\u00a0\u00bbon\u00a0\u00bb background_color_gradient_stops__hover=\u00a0\u00bb#2b87da 0%|#29c4a9 100%\u00a0\u00bb][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Rencontrez l&rsquo;\u00e9quipeCure CLCN4 est dirig\u00e9 par une \u00e9quipe d\u00e9vou\u00e9e compos\u00e9e de parents, de scientifiques et de professionnels qui travaillent ensemble pour faire avancer la recherche et soutenir les familles touch\u00e9es par une maladie li\u00e9e au g\u00e8ne CLCN4.Nos administrateurs assurent la gouvernance et la direction strat\u00e9gique, tandis que nos conseillers scientifiques apportent leur expertise de niveau [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-3308","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/pages\/3308","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/comments?post=3308"}],"version-history":[{"count":10,"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/pages\/3308\/revisions"}],"predecessor-version":[{"id":7262,"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/pages\/3308\/revisions\/7262"}],"wp:attachment":[{"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/media?parent=3308"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}