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header_2_line_height=\u00a0\u00bb1.4em\u00a0\u00bb text_orientation=\u00a0\u00bbcenter\u00a0\u00bb max_width=\u00a0\u00bb850px\u00a0\u00bb module_alignment=\u00a0\u00bbcenter\u00a0\u00bb text_font_size_tablet=\u00a0\u00bb\u00a0\u00bb text_font_size_phone=\u00a0\u00bb17px\u00a0\u00bb text_font_size_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb header_2_font_size_tablet=\u00a0\u00bb32px\u00a0\u00bb header_2_font_size_phone=\u00a0\u00bb22px\u00a0\u00bb header_2_font_size_last_edited=\u00a0\u00bbon|desktop\u00a0\u00bb locked=\u00a0\u00bboff\u00a0\u00bb]<\/p>\n<h2>Recommandations pour la surveillance de la sant\u00e9 et les th\u00e9rapies cibl\u00e9es<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row custom_padding_last_edited=\u00a0\u00bbon|phone\u00a0\u00bb _builder_version=\u00a0\u00bb4.5.8&Prime; background_color=\u00a0\u00bb#ffffff\u00a0\u00bb max_width=\u00a0\u00bb1200px\u00a0\u00bb custom_padding=\u00a0\u00bb29px|80px|28px|80px|false|false\u00a0\u00bb 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custom_padding=\u00a0\u00bb||2px|||\u00a0\u00bb]<\/p>\n<p>\u00c0 l&rsquo;heure actuelle, il n&rsquo;existe aucun traitement curatif connu pour les troubles li\u00e9s \u00e0 la CLCN4. Cependant, des interventions pr\u00e9coces et des programmes \u00e9ducatifs peuvent optimiser l&rsquo;apprentissage et le d\u00e9veloppement social, et des m\u00e9dicaments peuvent aider \u00e0 g\u00e9rer les sympt\u00f4mes. Le traitement agressif des troubles \u00e9pileptiques est particuli\u00e8rement important pour maximiser le r\u00e9sultat du d\u00e9veloppement.<\/p>\n<p><strong>Nous recommandons une surveillance r\u00e9guli\u00e8re de la sant\u00e9, notamment :<\/strong><\/p>\n<p>1. <strong>Surveillance \u00e9troite du d\u00e9veloppement par un p\u00e9diatre<\/strong>, avec orientation appropri\u00e9e vers une intervention pr\u00e9coce et un soutien continu \u00e0 l&rsquo;\u00e9cole et apr\u00e8s l&rsquo;\u00e9cole.<\/p>\n<p>2. <strong>Orientation vers un neurologue<\/strong> pour examen et\/ou neuro-imagerie en cas de sympt\u00f4mes neurologiques nouveaux ou progressifs, y compris des crises ou des troubles du mouvement.<\/p>\n<p>3. <strong>Orientation rapide vers un sp\u00e9cialiste de la sant\u00e9 mentale<\/strong> en cas de pr\u00e9occupations concernant les sympt\u00f4mes de d\u00e9pression ou d&rsquo;anxi\u00e9t\u00e9, y compris chez les femmes porteuses de cette affection.<\/p>\n<p>4. <strong>Orientation vers un endocrinologue<\/strong> en cas de probl\u00e8mes de petite taille et\/ou de retard de croissance.<\/p>\n<p>[\/et_pb_blurb][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=\u00a0\u00bb1&Prime; 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Cependant, des interventions pr\u00e9coces et des programmes \u00e9ducatifs peuvent optimiser l&rsquo;apprentissage et le d\u00e9veloppement social, et des m\u00e9dicaments peuvent aider \u00e0 g\u00e9rer les sympt\u00f4mes. Le traitement agressif des troubles [&hellip;]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-3560","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/pages\/3560","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/comments?post=3560"}],"version-history":[{"count":2,"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/pages\/3560\/revisions"}],"predecessor-version":[{"id":3562,"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/pages\/3560\/revisions\/3562"}],"wp:attachment":[{"href":"https:\/\/cureclcn4.org\/fr\/wp-json\/wp\/v2\/media?parent=3560"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}