[et_pb_section fb_built=”1″ admin_label=”Video” _builder_version=”3.22″ background_color=”#3a897e” custom_padding=”0|1px|0|0px|false|false” collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.5.8″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.5.8″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n
[et_pb_divider show_divider=”off” _builder_version=”4.5.8″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_divider]<\/p>\n
[\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”Get Involved” _builder_version=”3.22″ background_color=”#f7f9f9″ background_image=”https:\/\/cureclcn4.org\/wp-content\/uploads\/2020\/08\/charity-13.png” parallax=”on” custom_padding=”0|1px|102px|0px|false|false” use_custom_width=”on” custom_width_px=”1200px” custom_width_px__hover=”1080px” custom_width_px__hover_enabled=”1080px” custom_width_percent__hover=”80%” custom_width_percent__hover_enabled=”80%” collapsed=”off” global_colors_info=”{}” gutter_width__hover=”3″ gutter_width__hover_enabled=”3″ parallax_1__hover=”off” parallax_1__hover_enabled=”off” parallax_2__hover=”off” parallax_2__hover_enabled=”off” parallax_3__hover=”off” parallax_3__hover_enabled=”off” parallax_method_1__hover=”on” parallax_method_1__hover_enabled=”on” parallax_method_2__hover=”on” parallax_method_2__hover_enabled=”on” parallax_method_3__hover=”on” parallax_method_3__hover_enabled=”on” use_background_color_gradient__hover=”off” use_background_color_gradient__hover_enabled=”off” background_color_gradient_start__hover=”#2b87da” background_color_gradient_start__hover_enabled=”#2b87da” background_color_gradient_end__hover=”#29c4a9″ background_color_gradient_end__hover_enabled=”#29c4a9″ background_color_gradient_type__hover=”linear” background_color_gradient_type__hover_enabled=”linear” background_color_gradient_direction__hover=”180deg” background_color_gradient_direction__hover_enabled=”180deg” background_color_gradient_direction_radial__hover=”center” background_color_gradient_direction_radial__hover_enabled=”center” background_color_gradient_start_position__hover=”0%” background_color_gradient_start_position__hover_enabled=”0%” background_color_gradient_end_position__hover=”100%” background_color_gradient_end_position__hover_enabled=”100%” background_color_gradient_overlays_image__hover=”off” background_color_gradient_overlays_image__hover_enabled=”off” parallax__hover=”off” parallax__hover_enabled=”off” parallax_method__hover=”on” parallax_method__hover_enabled=”on” background_size__hover=”cover” background_size__hover_enabled=”cover” background_position__hover=”center” background_position__hover_enabled=”center” background_repeat__hover=”no-repeat” background_repeat__hover_enabled=”no-repeat” background_blend__hover=”normal” background_blend__hover_enabled=”normal” allow_player_pause__hover=”off” allow_player_pause__hover_enabled=”off” background_video_pause_outside_viewport__hover=”on” background_video_pause_outside_viewport__hover_enabled=”on” inner_shadow__hover=”off” inner_shadow__hover_enabled=”off” make_fullwidth__hover=”off” make_fullwidth__hover_enabled=”off” use_custom_width__hover=”off” use_custom_width__hover_enabled=”off” width_unit__hover=”on” width_unit__hover_enabled=”on” make_equal__hover=”off” make_equal__hover_enabled=”off” use_custom_gutter__hover=”off” use_custom_gutter__hover_enabled=”off” border_radii__hover=”on||||” border_radii__hover_enabled=”on||||” box_shadow_style__hover=”none” box_shadow_style__hover_enabled=”none” box_shadow_color__hover=”rgba(0,0,0,0.3)” box_shadow_color__hover_enabled=”rgba(0,0,0,0.3)” max_width__hover=”100%” max_width__hover_enabled=”100%” filter_hue_rotate__hover=”0deg” filter_hue_rotate__hover_enabled=”0deg” filter_saturate__hover=”100%” filter_saturate__hover_enabled=”100%” filter_brightness__hover=”100%” filter_brightness__hover_enabled=”100%” filter_contrast__hover=”100%” filter_contrast__hover_enabled=”100%” filter_invert__hover=”0%” filter_invert__hover_enabled=”0%” filter_sepia__hover=”0%” filter_sepia__hover_enabled=”0%” filter_opacity__hover=”100%” filter_opacity__hover_enabled=”100%” filter_blur__hover=”0px” filter_blur__hover_enabled=”0px” mix_blend_mode__hover=”normal” mix_blend_mode__hover_enabled=”normal” animation_style__hover=”none” animation_style__hover_enabled=”none” animation_repeat__hover=”once” animation_repeat__hover_enabled=”once” animation_direction__hover=”center” animation_direction__hover_enabled=”center” animation_duration__hover=”1000ms” animation_duration__hover_enabled=”1000ms” animation_delay__hover=”0ms” animation_delay__hover_enabled=”0ms” animation_intensity_slide__hover=”50%” animation_intensity_slide__hover_enabled=”50%” animation_intensity_zoom__hover=”50%” animation_intensity_zoom__hover_enabled=”50%” animation_intensity_flip__hover=”50%” animation_intensity_flip__hover_enabled=”50%” animation_intensity_fold__hover=”50%” animation_intensity_fold__hover_enabled=”50%” animation_intensity_roll__hover=”50%” animation_intensity_roll__hover_enabled=”50%” animation_starting_opacity__hover=”0%” animation_starting_opacity__hover_enabled=”0%” animation_speed_curve__hover=”ease-in-out” animation_speed_curve__hover_enabled=”ease-in-out” hover_transition_duration__hover=”300ms” hover_transition_duration__hover_enabled=”300ms” hover_transition_delay__hover=”0ms” hover_transition_delay__hover_enabled=”0ms” hover_transition_speed_curve__hover=”ease” hover_transition_speed_curve__hover_enabled=”ease” inner_max_width__hover=”1080px” inner_max_width__hover_enabled=”1080px”][et_pb_row custom_padding_last_edited=”on|phone” _builder_version=”3.25″ background_color=”#ffffff” max_width=”1200px” custom_padding=”40px|80px|27px|80px|false|true” custom_padding_tablet=”” custom_padding_phone=”|30px||30px||true” box_shadow_style=”preset3″ box_shadow_vertical=”40px” box_shadow_blur=”100px” box_shadow_spread=”-30px” box_shadow_color=”rgba(0,0,0,0.22)” use_custom_width=”on” custom_width_px=”1200px” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.5.8″ text_font=”Faustina||||||||” text_font_size=”24px” text_line_height=”2em” link_font=”|700|||||||” link_text_color=”#26c699″ header_font=”||||||||” header_2_font=”Faustina|600|||||||” header_2_text_color=”#0e7162″ header_2_font_size=”42px” header_2_line_height=”1.4em” text_orientation=”center” max_width=”850px” module_alignment=”center” text_font_size_tablet=”” text_font_size_phone=”17px” text_font_size_last_edited=”on|phone” header_2_font_size_tablet=”32px” header_2_font_size_phone=”22px” header_2_font_size_last_edited=”on|desktop” locked=”off” global_colors_info=”{}”]<\/p>\n
[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row column_structure=”1_2,1_2″ use_custom_gutter=”on” gutter_width=”2″ make_equal=”on” custom_padding_last_edited=”on|phone” _builder_version=”4.5.8″ background_color=”#ffffff” max_width=”1200px” custom_padding=”29px|80px|28px|80px|false|false” custom_padding_tablet=”|80px||80px|false|true” custom_padding_phone=”40px|30px||30px||true” box_shadow_style=”preset3″ box_shadow_vertical=”40px” box_shadow_blur=”100px” box_shadow_spread=”-30px” box_shadow_color=”rgba(0,0,0,0.22)” use_custom_width=”on” custom_width_px=”1200px” global_colors_info=”{}”][et_pb_column type=”1_2″ _builder_version=”4.5.8″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/cureclcn4.org\/wp-content\/uploads\/2021\/03\/Screenshot-2021-02-25-at-19.48.22.png” title_text=”Screenshot 2021-02-25 at 19.48.22″ _builder_version=”4.13.1″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″ max_height=”501px”][\/et_pb_image][\/et_pb_column][et_pb_column type=”1_2″ _builder_version=”4.5.8″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_image src=”https:\/\/cureclcn4.org\/wp-content\/uploads\/2021\/03\/Screenshot-2021-02-25-at-19.48.11-copy.png” title_text=”Screenshot 2021-02-25 at 19.48.11 copy” _builder_version=”4.13.1″ _module_preset=”default” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″ max_height=”501px”][\/et_pb_image][\/et_pb_column][\/et_pb_row][et_pb_row use_custom_gutter=”on” gutter_width=”2″ make_equal=”on” custom_padding_last_edited=”on|phone” _builder_version=”4.5.8″ background_color=”#ffffff” max_width=”1200px” min_height=”1397.6px” custom_padding=”29px|80px|28px|80px|false|false” custom_padding_tablet=”|80px||80px|false|true” custom_padding_phone=”40px|30px||30px||true” box_shadow_style=”preset3″ box_shadow_vertical=”40px” box_shadow_blur=”100px” box_shadow_spread=”-30px” box_shadow_color=”rgba(0,0,0,0.22)” use_custom_width=”on” custom_width_px=”1200px” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.5.8″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.5.8″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n
Isabella \u00e8 una bambina di 4 anni molto dolce e affettuosa che ama Peppa Pig e la musica. Nel dicembre del 2019, le \u00e8 stata diagnosticata una condizione correlata a CLCN4 (variante c. 2152C> T). Isabella vive a Ponte a Moriano, un piccolo paese in provincia di Lucca, in Toscana, con suo pap\u00e0 Andrea, suo fratello maggiore, Cristiano e io, Ilaria, sua mamma.<\/p>\n
Isabella era una bambina tanto desiderata e tanto attesa. \u00c8 nata il 6 luglio 2016 con un parto cesareo programmato a 38 settimane. Era piccola, pesava solo 2 kg e 520 g, ma era sana. I primi mesi sono andati come tutti i neonati, con qualche pianto, allattamenti al seno un po ‘difficili e cambi di pannolini, ma anche le sue prime vocalizzazioni e sorrisi. Questo \u00e8 stato un periodo di felicit\u00e0. Tuttavia, poche ore dopo la sua prima vaccinazione, Isabella inizi\u00f2 a mostrare rigidit\u00e0, gli occhi fissi e quasi smise di respirare. Gli episodi sono durati solo pochi secondi ma, da mamma, ho subito capito che qualcosa non andava. L’abbiamo portata al pronto soccorso e in seguito \u00e8 stata ricoverata in pediatria. Ha quindi iniziato a sottoporsi agli esami: esami del sangue, elettrocardiogrammi, elettroencefalogramma, ecc. Tutto \u00e8 risultato negativo e gli episodi sono stati interpretati come causati da reflusso.<\/p>\n
Dopodich\u00e9 siamo tornati a casa e abbiamo ripreso la nostra vita quotidiana, cercando di mettere da parte l’episodio. Tuttavia, mi sono poi resa conto che anche a sei mesi Isabella non era ancora seduta, non si rotolava e soprattutto, la cosa che mi preoccupava di pi\u00f9, era che non riusciva a tenere la testa alta. Avendo gi\u00e0 avuto l’esperienza del fratello Cristiano, nato prematuro e che soffriva anche di qualche ritardo nello sviluppo motorio, era inevitabile notare che Isabella era ancora pi\u00fa ritardata. Il campanello d’allarme era chiaro e forte: c’era qualcosa che non andava con Isabella.<\/p>\n
La diagnosi \u00e8 arrivata a dicembre 2019. Isabella aveva una mutazione nel gene CLCN4. Ci sono stati pochi casi di questa condizione nel mondo e forse siamo stati l’unico caso in Italia. A questo punto ci siamo sentiti delusi, tristi, arrabbiati e profondamente impotenti. I medici dissero che non si sapeva molto su questa condizione e che non esisteva una cura. Essendo una malattia rara e sapendo che la ricerca tende ad esserci con condizioni che hanno pi\u00f9 casi, avevamo paura che Isabella sarebbe rimasta nell’ombra. Ma non deve, \u00e8 il nostro sole!<\/p>\n
La mancanza di ricerche su questa condizione e la scarsit\u00e0 di informazioni ci hanno anche fatto capire che abbiamo un ruolo chiave da svolgere nell’aiutare a far progredire le cose. La diagnosi di CLCN4 significa che il nostro futuro, e quello di Isabella, sar\u00e0 tutt’altro che facile e speriamo che la ricerca possa portare allo sviluppo di terapie che potrebbero aiutare a migliorare diversi aspetti della vita di Isabella.<\/p>\n
\u00a0<\/p>\n
[\/et_pb_text][et_pb_text _builder_version=”4.9.3″ _module_preset=”default” custom_padding=”||15px|||” global_colors_info=”{}”]<\/p>\n
Se vuoi sostenere Isabella e altri bambini con CLCN4, considera di fare una donazione a Cure CLCN4. <\/strong><\/span>\u00a0<\/strong><\/span><\/p>\n [\/et_pb_text][et_pb_button button_url=”https:\/\/www.paypal.com\/donate?hosted_button_id=DFUAQJX8LFB8S” url_new_window=”on” button_text=”Dona ora” button_alignment=”center” _builder_version=”4.9.3″ _module_preset=”default” custom_button=”on” button_text_size=”22px” button_text_color=”#ffffff” button_bg_color=”#12876f” button_border_width=”0px” button_border_color=”#f0b800″ button_border_radius=”4px” button_letter_spacing=”0px” button_icon_color=”#000000″ global_colors_info=”{}”][\/et_pb_button][et_pb_text _builder_version=”4.5.8″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n t<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”Video” _builder_version=”3.22″ background_color=”#3a897e” custom_padding=”0|1px|0|0px|false|false” collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”4.5.8″ _module_preset=”default” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.5.8″ _module_preset=”default” global_colors_info=”{}”]<\/p>\n [et_pb_divider show_divider=”off” _builder_version=”4.5.8″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_divider]<\/p>\n [\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=”1″ fullwidth=”on” _builder_version=”3.22″ background_color=”#f7f9f9″ global_colors_info=”{}” use_background_color_gradient__hover=”off” use_background_color_gradient__hover_enabled=”off” background_color_gradient_start__hover=”#2b87da” background_color_gradient_start__hover_enabled=”#2b87da” background_color_gradient_end__hover=”#29c4a9″ background_color_gradient_end__hover_enabled=”#29c4a9″ background_color_gradient_type__hover=”linear” background_color_gradient_type__hover_enabled=”linear” background_color_gradient_direction__hover=”180deg” background_color_gradient_direction__hover_enabled=”180deg” background_color_gradient_direction_radial__hover=”center” background_color_gradient_direction_radial__hover_enabled=”center” background_color_gradient_start_position__hover=”0%” background_color_gradient_start_position__hover_enabled=”0%” background_color_gradient_end_position__hover=”100%” background_color_gradient_end_position__hover_enabled=”100%” background_color_gradient_overlays_image__hover=”off” background_color_gradient_overlays_image__hover_enabled=”off” parallax__hover=”off” parallax__hover_enabled=”off” parallax_method__hover=”on” parallax_method__hover_enabled=”on” background_size__hover=”cover” background_size__hover_enabled=”cover” background_position__hover=”center” background_position__hover_enabled=”center” background_repeat__hover=”no-repeat” background_repeat__hover_enabled=”no-repeat” background_blend__hover=”normal” background_blend__hover_enabled=”normal” allow_player_pause__hover=”off” allow_player_pause__hover_enabled=”off” background_video_pause_outside_viewport__hover=”on” background_video_pause_outside_viewport__hover_enabled=”on”][et_pb_fullwidth_image src=”https:\/\/cureclcn4.org\/wp-content\/uploads\/2020\/08\/charity-23.png” _builder_version=”3.17.6″ animation_style=”slide” animation_direction=”bottom” animation_intensity_slide=”4%” global_colors_info=”{}”][\/et_pb_fullwidth_image][\/et_pb_section][et_pb_section fb_built=”1″ admin_label=”Footer” _builder_version=”3.22″ background_color=”rgba(14,113,98,0.9)” use_background_color_gradient=”on” background_color_gradient_start=”#0e7162″ background_color_gradient_end=”rgba(14,113,98,0.88)” background_color_gradient_overlays_image=”on” background_image=”https:\/\/cureclcn4.org\/wp-content\/uploads\/2020\/08\/charity-25.jpg” collapsed=”off” global_colors_info=”{}”][et_pb_row _builder_version=”3.25″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_text _builder_version=”4.5.8″ text_font=”||||||||” text_line_height=”2em” ul_font=”||||||||” ol_font=”||||||||” header_font=”||||||||” header_2_font=”Faustina|600|||||||” header_2_font_size=”42px” header_2_line_height=”1.4em” header_3_font=”||||||||” header_4_font=”||||||||” header_5_font=”||||||||” header_6_font=”||||||||” text_orientation=”center” background_layout=”dark” max_width=”600px” module_alignment=”center” header_2_font_size_tablet=”32px” header_2_font_size_phone=”22px” header_2_font_size_last_edited=”on|desktop” locked=”off” global_colors_info=”{}”]<\/p>\n [\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”3.25″ background_color=”#ffffff” max_width=”850px” custom_padding=”60px|60px|60px|60px|true|true” animation_style=”slide” animation_direction=”top” animation_intensity_slide=”2%” box_shadow_style=”preset3″ box_shadow_vertical=”40px” box_shadow_blur=”100px” box_shadow_spread=”-30px” box_shadow_color=”rgba(0,0,0,0.22)” use_custom_width=”on” custom_width_px=”850px” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”][et_pb_contact_form email=”info@cureclcn4.org” success_message=”Grazie per averci contattato. Ci metteremo presto in contatto.” module_id=”et_pb_contact_form_1″ _builder_version=”4.13.1″ _unique_id=”e5114920-5a5f-4185-829b-e736b8b19271″ form_field_background_color=”rgba(0,0,0,0)” form_field_font=”||||||||” custom_button=”on” button_text_size=”14px” button_text_color=”#ffffff” button_bg_color=”#26c699″ button_border_width=”8px” button_border_color=”rgba(0,0,0,0)” button_letter_spacing=”1px” button_font=”|700||on|||||” border_radii=”on|3px|3px|3px|3px” border_width_all=”1px” border_color_all=”rgba(51,51,51,0.15)” form_background_color=”rgba(0,0,0,0)” global_colors_info=”{}”][et_pb_contact_field field_id=”Name” field_title=”Nome” _builder_version=”3.16″ global_colors_info=”{}” button_text_size__hover_enabled=”off” button_one_text_size__hover_enabled=”off” button_two_text_size__hover_enabled=”off” button_text_color__hover_enabled=”off” button_one_text_color__hover_enabled=”off” button_two_text_color__hover_enabled=”off” button_border_width__hover_enabled=”off” button_one_border_width__hover_enabled=”off” button_two_border_width__hover_enabled=”off” button_border_color__hover_enabled=”off” button_one_border_color__hover_enabled=”off” button_two_border_color__hover_enabled=”off” button_border_radius__hover_enabled=”off” button_one_border_radius__hover_enabled=”off” button_two_border_radius__hover_enabled=”off” button_letter_spacing__hover_enabled=”off” button_one_letter_spacing__hover_enabled=”off” button_two_letter_spacing__hover_enabled=”off” button_bg_color__hover_enabled=”off” button_one_bg_color__hover_enabled=”off” button_two_bg_color__hover_enabled=”off”][\/et_pb_contact_field][et_pb_contact_field field_id=”Email” field_title=”Indirizzo e-mail” field_type=”email” _builder_version=”3.16″ global_colors_info=”{}” button_text_size__hover_enabled=”off” button_one_text_size__hover_enabled=”off” button_two_text_size__hover_enabled=”off” button_text_color__hover_enabled=”off” button_one_text_color__hover_enabled=”off” button_two_text_color__hover_enabled=”off” button_border_width__hover_enabled=”off” button_one_border_width__hover_enabled=”off” button_two_border_width__hover_enabled=”off” button_border_color__hover_enabled=”off” button_one_border_color__hover_enabled=”off” button_two_border_color__hover_enabled=”off” button_border_radius__hover_enabled=”off” button_one_border_radius__hover_enabled=”off” button_two_border_radius__hover_enabled=”off” button_letter_spacing__hover_enabled=”off” button_one_letter_spacing__hover_enabled=”off” button_two_letter_spacing__hover_enabled=”off” button_bg_color__hover_enabled=”off” button_one_bg_color__hover_enabled=”off” button_two_bg_color__hover_enabled=”off”][\/et_pb_contact_field][et_pb_contact_field field_id=”Message” field_title=”Messaggio” field_type=”text” fullwidth_field=”on” _builder_version=”3.16″ global_colors_info=”{}” button_text_size__hover_enabled=”off” button_one_text_size__hover_enabled=”off” button_two_text_size__hover_enabled=”off” button_text_color__hover_enabled=”off” button_one_text_color__hover_enabled=”off” button_two_text_color__hover_enabled=”off” button_border_width__hover_enabled=”off” button_one_border_width__hover_enabled=”off” button_two_border_width__hover_enabled=”off” button_border_color__hover_enabled=”off” button_one_border_color__hover_enabled=”off” button_two_border_color__hover_enabled=”off” button_border_radius__hover_enabled=”off” button_one_border_radius__hover_enabled=”off” button_two_border_radius__hover_enabled=”off” button_letter_spacing__hover_enabled=”off” button_one_letter_spacing__hover_enabled=”off” button_two_letter_spacing__hover_enabled=”off” button_bg_color__hover_enabled=”off” button_one_bg_color__hover_enabled=”off” button_two_bg_color__hover_enabled=”off”][\/et_pb_contact_field][et_pb_contact_field field_id=”How_did_you_hear_about_us?” field_title=”Come hai saputo di noi?” fullwidth_field=”on” _builder_version=”4.5.8″ _module_preset=”default” global_colors_info=”{}”][\/et_pb_contact_field][\/et_pb_contact_form][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=”3.25″ global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”3.25″ custom_padding=”|||” global_colors_info=”{}” custom_padding__hover=”|||”]<\/p>\n [et_pb_social_media_follow _builder_version=”4.9.4″ text_orientation=”center” custom_margin=”|||||true” border_radii=”on|40px|40px|40px|40px” locked=”off” global_colors_info=”{}”][et_pb_social_media_follow_network social_network=”facebook” url=”https:\/\/www.facebook.com\/CureCLCN4″ _builder_version=”4.9.4″ background_color=”rgba(255,255,255,0.2)” custom_margin=”|6px||6px||true” custom_padding=”8px|8px|8px|8px|true|true” global_colors_info=”{}” follow_button=”off” url_new_window=”on”]facebook[\/et_pb_social_media_follow_network][et_pb_social_media_follow_network social_network=”linkedin” url=”https:\/\/uk.linkedin.com\/company\/cure-clcn4?trk=public_profile_experience-item_result-card_image-click” _builder_version=”4.5.8″ _module_preset=”default” background_color=”rgba(255,255,255,0.2)” custom_margin=”|6px||6px|false|false” custom_padding=”8px|8px|8px|8px|false|false” global_colors_info=”{}” follow_button=”off” url_new_window=”on”]linkedin[\/et_pb_social_media_follow_network][\/et_pb_social_media_follow]<\/p>\n [\/et_pb_column][\/et_pb_row][\/et_pb_section]<\/p>\n","protected":false},"excerpt":{"rendered":" Incontra Isabella (dalla Toscana, Italia)Isabella \u00e8 una bambina di 4 anni molto dolce e affettuosa che ama Peppa Pig e la musica. Nel dicembre del 2019, le \u00e8 stata diagnosticata una condizione correlata a CLCN4 (variante c. 2152C> T). Isabella vive a Ponte a Moriano, un piccolo paese in provincia di Lucca, in Toscana, con […]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-2209","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/pages\/2209","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/comments?post=2209"}],"version-history":[{"count":5,"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/pages\/2209\/revisions"}],"predecessor-version":[{"id":3197,"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/pages\/2209\/revisions\/3197"}],"wp:attachment":[{"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/media?parent=2209"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}Mettiti in contatto. Fatti coinvolgere.<\/h2>\n