{"id":2229,"date":"2021-11-25T11:34:10","date_gmt":"2021-11-25T11:34:10","guid":{"rendered":"https:\/\/cureclcn4.org\/raccomandazioni-per-la-sorveglianza-sanitaria-e-le-terapie-mirate\/"},"modified":"2023-01-11T13:30:55","modified_gmt":"2023-01-11T13:30:55","slug":"raccomandazioni-per-la-sorveglianza-sanitaria-e-le-terapie-mirate","status":"publish","type":"page","link":"https:\/\/cureclcn4.org\/it\/raccomandazioni-per-la-sorveglianza-sanitaria-e-le-terapie-mirate\/","title":{"rendered":"Raccomandazioni per la sorveglianza sanitaria e le terapie mirate"},"content":{"rendered":"

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Raccomandazioni per la sorveglianza sanitaria e le terapie mirate<\/h2>\n

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Attualmente non esiste una cura nota per un disturbo correlato a CLCN4. Tuttavia, interventi precoci e programmi educativi possono massimizzare l’apprendimento e lo sviluppo sociale, mentre i farmaci possono aiutare a gestire i sintomi. Il trattamento aggressivo del disturbo convulsivo \u00e8 particolarmente importante per massimizzare i risultati dello sviluppo.<\/p>\n

Si consiglia di effettuare una regolare sorveglianza sanitaria che comprenda:<\/strong><\/p>\n

1. Un’attenta sorveglianza dello sviluppo da parte di un pediatra<\/strong>, con l’appropriato rinvio per un intervento precoce e un supporto continuo a scuola e dopo la scuola.<\/p>\n

2. Se si tratta di sintomi neurologici di nuova insorgenza o progressivi, tra cui crisi epilettiche o disturbi del movimento, \u00e8 necessario rivolgersi a un neurologo<\/strong> per una visita e\/o una neuroimmagine.<\/p>\n

3. In caso di sintomi di depressione o ansia, anche nelle donne portatrici di questa patologia, \u00e8 necessario rivolgersi tempestivamente a uno specialista della salute mentale<\/strong>.<\/p>\n

4. In caso di problemi di bassa statura e\/o di mancata crescita, rivolgersi a un endocrinologo<\/strong>.<\/p>\n

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Contattate. Partecipa.<\/h2>\n

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Raccomandazioni per la sorveglianza sanitaria e le terapie mirateAttualmente non esiste una cura nota per un disturbo correlato a CLCN4. Tuttavia, interventi precoci e programmi educativi possono massimizzare l’apprendimento e lo sviluppo sociale, mentre i farmaci possono aiutare a gestire i sintomi. Il trattamento aggressivo del disturbo convulsivo \u00e8 particolarmente importante per massimizzare i risultati […]<\/p>\n","protected":false},"author":2,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_et_pb_use_builder":"on","_et_pb_old_content":"","_et_gb_content_width":"","footnotes":""},"class_list":["post-2229","page","type-page","status-publish","hentry"],"_links":{"self":[{"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/pages\/2229","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/comments?post=2229"}],"version-history":[{"count":8,"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/pages\/2229\/revisions"}],"predecessor-version":[{"id":3567,"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/pages\/2229\/revisions\/3567"}],"wp:attachment":[{"href":"https:\/\/cureclcn4.org\/it\/wp-json\/wp\/v2\/media?parent=2229"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}