{"id":7378,"date":"2025-12-14T12:17:36","date_gmt":"2025-12-14T12:17:36","guid":{"rendered":"https:\/\/cureclcn4.org\/inicio\/"},"modified":"2026-02-09T12:25:46","modified_gmt":"2026-02-09T12:25:46","slug":"inicio","status":"publish","type":"page","link":"https:\/\/cureclcn4.org\/pt-br\/","title":{"rendered":"In\u00edcio"},"content":{"rendered":"<p>[et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Header&#8221; _builder_version=&#8221;4.16&#8243; background_color=&#8221;#f7f9f9&#8243; parallax=&#8221;on&#8221; min_height=&#8221;587.4px&#8221; custom_padding=&#8221;||29px|||&#8221; collapsed=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_2,1_2&#8243; _builder_version=&#8221;4.27.4&#8243; min_height=&#8221;202.2px&#8221; custom_margin=&#8221;0px|auto|0px|auto|false|false&#8221; custom_padding=&#8221;0px||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;40px||40px||false|false&#8221; custom_padding_tablet=&#8221;0px||&#8221; custom_padding_phone=&#8221;&#8221; custom_padding_last_edited=&#8221;on|desktop&#8221; global_colors_info=&#8221;{}&#8221; padding_tablet=&#8221;0px||&#8221; padding_last_edited=&#8221;on|tablet&#8221; custom_padding__hover=&#8221;|||&#8221; padding_phone=&#8221;0px||&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; text_font=&#8221;||||||||&#8221; text_line_height=&#8221;2em&#8221; header_font=&#8221;Faustina|600|||||||&#8221; header_text_color=&#8221;#0e7162&#8243; header_font_size=&#8221;60px&#8221; header_line_height=&#8221;1.3em&#8221; custom_margin=&#8221;-19px|||||&#8221; header_font_size_tablet=&#8221;50px&#8221; header_font_size_phone=&#8221;40px&#8221; header_font_size_last_edited=&#8221;on|phone&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h1>Vamos curar o CLCN4<\/h1>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; text_font=&#8221;||||||||&#8221; text_font_size=&#8221;18px&#8221; text_line_height=&#8221;2em&#8221; header_font=&#8221;Faustina||||||||&#8221; header_text_color=&#8221;#0e7162&#8243; header_font_size=&#8221;60px&#8221; header_line_height=&#8221;1.3em&#8221; custom_margin=&#8221;||17px|||&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: justify;\">Somos uma institui\u00e7\u00e3o beneficente registrada com o objetivo de oferecer apoio, aumentar a conscientiza\u00e7\u00e3o e financiar pesquisas m\u00e9dicas para tratamentos eficazes para doen\u00e7as <em>relacionadas ao CLCN4<\/em>.<\/p>\n<p>[\/et_pb_text][et_pb_text _builder_version=&#8221;4.27.4&#8243; text_font=&#8221;||||||||&#8221; text_font_size=&#8221;16px&#8221; text_line_height=&#8221;2em&#8221; header_font=&#8221;Faustina||||||||&#8221; header_text_color=&#8221;#0e7162&#8243; header_font_size=&#8221;60px&#8221; header_line_height=&#8221;1.3em&#8221; custom_margin=&#8221;||0px||false|false&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<p style=\"text-align: justify;\"><em>A CLCN4<\/em> \u00e9 uma doen\u00e7a gen\u00e9tica rara que causa defici\u00eancia intelectual e outros problemas, como epilepsia, dist\u00farbios comportamentais, dist\u00farbios de movimento e microcefalia.<\/p>\n<p>[\/et_pb_text][et_pb_code _builder_version=&#8221;4.27.4&#8243; 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header_2_line_height__hover_enabled=&#8221;1em&#8221; header_2_text_shadow_style__hover=&#8221;none&#8221; header_2_text_shadow_style__hover_enabled=&#8221;none&#8221; header_2_text_shadow_color__hover=&#8221;rgba(0,0,0,0.4)&#8221; header_2_text_shadow_color__hover_enabled=&#8221;rgba(0,0,0,0.4)&#8221;]<\/p>\n<h3>O que fazemos<\/h3>\n<p>O Cure CLCN4 tem o compromisso de encontrar op\u00e7\u00f5es de tratamento vi\u00e1veis para as fam\u00edlias afetadas pelas variantes do CLCN4. Algumas das coisas que apoiamos incluem: <\/p>\n<p>&#8211; A identifica\u00e7\u00e3o de projetos de pesquisa adequados<\/p>\n<p>&#8211; Configura\u00e7\u00e3o e manuten\u00e7\u00e3o de um registro de pacientes<\/p>\n<p>&#8211; Facilita\u00e7\u00e3o de uma comunidade de fam\u00edlias afetadas<\/p>\n<p>&nbsp;<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;1_2&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; custom_padding_tablet=&#8221;|||||true&#8221; custom_padding_last_edited=&#8221;off|desktop&#8221; global_colors_info=&#8221;{}&#8221; padding_tablet=&#8221;|||||true&#8221; padding_last_edited=&#8221;off|desktop&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; text_font=&#8221;||||||||&#8221; text_line_height=&#8221;2em&#8221; header_font=&#8221;||||||||&#8221; header_3_font=&#8221;Faustina|600|||||||&#8221; header_3_text_color=&#8221;#0e7162&#8243; header_3_font_size=&#8221;26px&#8221; header_3_line_height=&#8221;1.2em&#8221; max_width=&#8221;600px&#8221; header_3_font_size_tablet=&#8221;22px&#8221; header_3_font_size_phone=&#8221;18px&#8221; header_3_font_size_last_edited=&#8221;on|tablet&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221; header_2_font_size__hover=&#8221;26px&#8221; header_2_font_size__hover_enabled=&#8221;26px&#8221; header_2_letter_spacing__hover=&#8221;0px&#8221; header_2_letter_spacing__hover_enabled=&#8221;0px&#8221; header_2_line_height__hover=&#8221;1em&#8221; header_2_line_height__hover_enabled=&#8221;1em&#8221; header_2_text_shadow_style__hover=&#8221;none&#8221; header_2_text_shadow_style__hover_enabled=&#8221;none&#8221; header_2_text_shadow_color__hover=&#8221;rgba(0,0,0,0.4)&#8221; header_2_text_shadow_color__hover_enabled=&#8221;rgba(0,0,0,0.4)&#8221;]<\/p>\n<h3>Nossa hist\u00f3ria<\/h3>\n<p>A Cure CLCN4 foi criada por uma fam\u00edlia com uma crian\u00e7a afetada. Leia nossa hist\u00f3ria <a href=\"https:\/\/cureclcn4.org\/367-2\/\">aqui<\/a>. <\/p>\n<p>Nossa jornada \u00e9 uma experi\u00eancia de aprendizado cont\u00ednuo sobre como abrir novos caminhos para tratamentos revolucion\u00e1rios para pacientes, fam\u00edlias e pesquisadores.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][\/et_pb_section][et_pb_section fb_built=&#8221;1&#8243; admin_label=&#8221;Features&#8221; _builder_version=&#8221;4.16&#8243; collapsed=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row column_structure=&#8221;1_3,2_3&#8243; _builder_version=&#8221;4.16&#8243; max_width=&#8221;1280px&#8221; use_custom_width=&#8221;on&#8221; custom_width_px=&#8221;1280px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;1_3&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; text_font=&#8221;||||||||&#8221; text_line_height=&#8221;2em&#8221; header_font=&#8221;||||||||&#8221; header_2_font=&#8221;Faustina|600|||||||&#8221; header_2_text_color=&#8221;#0e7162&#8243; header_2_font_size=&#8221;42px&#8221; header_2_line_height=&#8221;1.4em&#8221; max_width=&#8221;600px&#8221; module_alignment=&#8221;center&#8221; header_2_font_size_tablet=&#8221;32px&#8221; header_2_font_size_phone=&#8221;22px&#8221; header_2_font_size_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Convidamos fam\u00edlias de todo o mundo<\/h2>\n<p>Se voc\u00ea tem um membro da fam\u00edlia afetado pela variante da condi\u00e7\u00e3o relacionada ao CLCN4, convidamos voc\u00ea a entrar em contato e participar do nosso Registro.<\/p>\n<p>[\/et_pb_text][\/et_pb_column][et_pb_column type=&#8221;2_3&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_image src=&#8221;https:\/\/cureclcn4.org\/wp-content\/uploads\/2020\/08\/charity-19.png&#8221; 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admin_label=&#8221;Footer&#8221; _builder_version=&#8221;4.16&#8243; background_color=&#8221;rgba(14,113,98,0.9)&#8221; use_background_color_gradient=&#8221;on&#8221; background_color_gradient_stops=&#8221;#0e7162 0%|rgba(14,113,98,0.88) 100%&#8221; background_color_gradient_overlays_image=&#8221;on&#8221; background_color_gradient_start=&#8221;#0e7162&#8243; background_color_gradient_end=&#8221;rgba(14,113,98,0.88)&#8221; background_image=&#8221;https:\/\/cureclcn4.org\/wp-content\/uploads\/2020\/08\/charity-25.jpg&#8221; locked=&#8221;off&#8221; collapsed=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_row _builder_version=&#8221;4.16&#8243; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_text _builder_version=&#8221;4.16&#8243; text_font=&#8221;||||||||&#8221; text_line_height=&#8221;2em&#8221; ul_font=&#8221;||||||||&#8221; ol_font=&#8221;||||||||&#8221; header_font=&#8221;||||||||&#8221; header_2_font=&#8221;Faustina|600|||||||&#8221; header_2_font_size=&#8221;42px&#8221; header_2_line_height=&#8221;1.4em&#8221; header_3_font=&#8221;||||||||&#8221; header_4_font=&#8221;||||||||&#8221; header_5_font=&#8221;||||||||&#8221; header_6_font=&#8221;||||||||&#8221; text_orientation=&#8221;center&#8221; background_layout=&#8221;dark&#8221; max_width=&#8221;600px&#8221; module_alignment=&#8221;center&#8221; header_2_font_size_tablet=&#8221;32px&#8221; header_2_font_size_phone=&#8221;22px&#8221; header_2_font_size_last_edited=&#8221;on|desktop&#8221; locked=&#8221;off&#8221; global_colors_info=&#8221;{}&#8221;]<\/p>\n<h2>Entre em contacto. Envolver-se.<\/h2>\n<p>[\/et_pb_text][\/et_pb_column][\/et_pb_row][et_pb_row _builder_version=&#8221;4.16&#8243; background_color=&#8221;#ffffff&#8221; max_width=&#8221;850px&#8221; custom_padding=&#8221;60px|60px|60px|60px|true|true&#8221; animation_style=&#8221;slide&#8221; animation_direction=&#8221;top&#8221; animation_intensity_slide=&#8221;2%&#8221; box_shadow_style=&#8221;preset3&#8243; box_shadow_vertical=&#8221;40px&#8221; box_shadow_blur=&#8221;100px&#8221; box_shadow_spread=&#8221;-30px&#8221; box_shadow_color=&#8221;rgba(0,0,0,0.22)&#8221; use_custom_width=&#8221;on&#8221; custom_width_px=&#8221;850px&#8221; global_colors_info=&#8221;{}&#8221;][et_pb_column type=&#8221;4_4&#8243; _builder_version=&#8221;4.16&#8243; custom_padding=&#8221;|||&#8221; global_colors_info=&#8221;{}&#8221; custom_padding__hover=&#8221;|||&#8221;][et_pb_contact_form email=&#8221;info@cureclcn4.org&#8221; success_message=&#8221;Obrigado por nos contactar. 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