Cure CLCN4

Family Meeting 2024

Welcome to the 2nd Annual Cure CLCN4 Online Family Meeting, set for June 6th at 5:30 PM UK time. This entirely online event promises an enriching experience with a lineup of leading experts in the field of CLCN4-related condition. Don’t miss this unique opportunity to gain insights into the clinical aspects of CLCN4-related condition, participate in the ‘Ask the Experts’ session, and hear the latest research updates directly impacting the CLCN4 community.

Key details

When: Thursday 6th June (5:30-8:30pm BST)
Where: online (on Zoom)
Organizer: Cure CLCN4
Registration: please click here to register. Registration closes 4th June.

Language:  English 

Conference description

The Cure CLCN4 Family Meeting 2024 brings together families, researchers, and healthcare professionals in a collaborative online environment to discuss significant advancements and ongoing research in CLCN4-related conditions. The meeting will feature a comprehensive session by Dr. Elizabeth Emma Palmer, offering the latest clinical updates on CLCN4-related condition. Following this, families will have the chance to interact with a panel of specialists during the ‘Ask the Experts’ session, providing a platform to address individual queries and concerns. The conference will also cover crucial updates on the Simons Searchlight CLCN4 patient registry and the ongoing CLCN4 Speech & Language study. Registration is essential for participation, available here. Please note, the event will be conducted in English only.

Conference program 

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