News & Updates

Cure CLCN4 Scientific Meeting 2023Calling all researchers, clinicians, and advocates for CLCN4-related neurodevelopmental condition! Don't miss the second Cure CLCN4 Scientific Conference taking place on June 16th and 17th, 2023 in London (*hybrid meeting). Join us as...

Thanks to the fundraising efforts of the CLCN4 community, who helped us raise £50,000 towards this project, and the fantastic work of the PHENOMIN-ICS team (France), two Clcn4 rat models are now available to researchers! Wondering what this means? Keep reading for an easy-to-understand summary!

Fundraising alert. Support Marc, Rob, Jose and Michael on their quest to walk 60 km in 24 hours along the river Thames in London.

Join us in CLCN4on May 27th & 28th 2022 for an opportunity to hear from world-leading experts from the ion channel, rare disease, and drug discovery fields.

Thinking about what to do this autumn? Join CureCLCN4’s 60×60 challenge and help us move research on CLCN4 condition forward. Together, we can do it!

Join us on our journey to find a cure for CLCN4 by donating today! Our goal is to raise £50,000 to create a CLCN4 rat model, which is essential for kickstarting scientific research into CLCN4. Together, we can make a difference!

Cure CLCN4 is looking for a driven and talented individual to join the team as an intern. This internship role will focus on supporting the charity’s outreach and fundraising activities, which are key to advancing our research goals and connecting, educating and supporting the CLCN4 community and beyond.

Join us on Sunday 22nd August 2021 for an opportunity to hear from world-leading experts in CLCN4 and connect with other families navigating the journey of a CLCN4 diagnosis.