News & Updates

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Cure CLCN4 Scientific Meeting

Join us in CLCN4on May 27th & 28th 2022 for an opportunity to hear from world-leading experts from the ion channel, rare disease, and drug discovery fields.

Fundraising alert! Support the challenge

60 km in 24 hours, and a £10,000 target!Support Marc, Rob, Jose and Michael on their quest to walk 60 km in 24 hours along the river Thames in London. Their goal is to raise awareness of CLCN4 condition and raise £10,000 towards scientific research. To support their...

Join CureCLCN4’s 60×60 challenge!

Thinking about what to do this autumn? Join CureCLCN4’s 60×60 challenge and help us move research on CLCN4 condition forward. Together, we can do it!

The race to cure CLCN4 starts here!

Join us on our journey to find a cure for CLCN4 by donating today! Our goal is to raise £50,000 to create a CLCN4 rat model, which is essential for kickstarting scientific research into CLCN4. Together, we can make a difference!

Cure CLCN4 Internship Opportunity

Cure CLCN4 is looking for a driven and talented individual to join the team as an intern. This internship role will focus on supporting the charity’s outreach and fundraising activities, which are key to advancing our research goals and connecting, educating and supporting the CLCN4 community and beyond.

Cure CLCN4 Family Meeting Announcement

Join us on Sunday 22nd August 2021 for an opportunity to hear from world-leading experts in CLCN4 and connect with other families navigating the journey of a CLCN4 diagnosis. 

Cure CLCN4 Internship Opportunity

Cure CLCN4 Internship Opportunity

Cure CLCN4 is looking for a driven and talented individual to join the team as an intern. This internship role will focus on supporting the charity’s outreach and fundraising activities, which are key to advancing our research goals and connecting, educating and supporting the CLCN4 community and beyond.

Get in Touch. Get Involved.

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