News & Updates
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Join Our Team
Cure CLCN4 is looking for a driven and talented individual to join the team as our Research & Communications Intern. This internship role will focus on supporting the charity’s activities, including communications, fundraising, and outreach activities, all of which are key to advancing our goals and connecting, educating, and supporting the CLCN4 community.
Cure CLCN4 Grant Awardees – For Families
We are pleased to announce the recipients of our recent pilot grant call, focused on advancing the understanding of CLCN4-related condition. We received a number of strong proposals, and while we have selected a few for funding, we want to express our appreciation to all applicants for their dedication and effort. Continue reading to meet the applicants and learn about their projects!
Congratulations to the Cure CLCN4 Grant Awardees!
We are pleased to announce the recipients of our recent pilot grant call, awarding a total of £150,000 to advance the understanding of CLCN4-related condition. We received a number of strong proposals, and while we have selected a few for funding, we want to express our appreciation to all applicants for their dedication and effort. Continue reading to meet the awardees and learn about their projects!
Cure CLCN4 Family Meeting 2024
Welcome to the 2nd Annual Cure CLCN4 Online Family Meeting, set for June 6th at 5:30 PM UK time. This entirely online event promises an enriching experience with a lineup of leading experts in the field of CLCN4-related conditions. Don’t miss this unique opportunity to gain insights into the clinical aspects of CLCN4-related condition, participate in the ‘Ask the Experts’ session, and hear the latest research updates directly impacting the CLCN4 community
Cure CLCN4 Scientific Conference 2024
Did last year’s Cure CLCN4 Scientific Conference leave you inspired? We’re thrilled to announce that the momentum continues with our third annual event! Join us on 7th & 8th June 2024, in London, UK, for another round of ground-breaking research, enlightening discussions, and invaluable networking opportunities.
Your Voice Matters: Join the study on Speech & Language in CLCN4-related condition
We are thrilled to announce that the Translational Centre of Research Excellence for Speech Disorders (Australia) has launched an international study aimed at exploring speech and language in individuals with CLCN4-related condition.