by Rebeca Ridings Figueroa | Sep 2, 2021 | Uncategorized
Join CureCLCN4’s 60×60 challenge! Thinking about what to do this autumn? Join Cure CLCN4’s 60×60 challenge running from 15th September to 15th November. So how does it work? Below are three easy steps to get you set up. 1. Pick your challenge!...
by Rebeca Ridings Figueroa | Aug 12, 2021 | Uncategorized
The race to cure CLCN4 starts here! Join us on our journey to find a cure for CLCN4 by donating today! Our goal is to raise £50,000 to create a CLCN4 model of disease, which is essential for kickstarting scientific research into CLCN4. Together, we can make a...
by Rebeca Ridings Figueroa | Jun 21, 2021 | Uncategorized
Volunteer Opportunity (remote, unpaid) Cure CLCN4 is looking for a driven and talented individual to join the team as an intern/volunteer. Join us for the exceptional opportunity to build new networks, and obtain experience in the rare disease, and non-profit sector....
by Rebeca Ridings Figueroa | Apr 29, 2021 | Uncategorized
1st Annual Cure CLCN4 Family Meeting Join us on Sunday 22nd August 2021 for an opportunity to hear from world-leading experts in CLCN4 and connect with other families navigating the journey of a CLCN4 diagnosis. What to expect Cure CLCN4’s 1st Annual Family...
Recent Comments