Join our monthly donation program

Monthly donations provide us with predictable support that enables us to plan ahead and allocate resources where they’re needed most! Whether it’s funding research projects, providing support to individuals and families, or raising awareness, your recurring donation helps us drive forward our key aims.

Our donation program

By donating to Cure CLCN4, you can help accelerate vital scientific and medical research, foster community connections through family and scientific conferences, and provide essential resources to newly diagnosed families. No matter the amount, your contribution helps us grow, fund future projects, and work towards finding effective therapies. Every donation comes with its own unique thank-you gift to show our appreciation. Join us in our mission to support those living with CLCN4 and contribute to a brighter future!

To receive the perks shown below, make sure to tick the ‘Want to stay in touch?’ box at the end of the donation process.

The impact of your donation

“…Then Cure CLCN4 came along, offering us hope, renewing my energy, and making me believe that perhaps something could change. That together, we might someday form our ocean.”

– Ilaria, mum of Isabella (Italy)

Your donations help advance our goals

Fuelling research

Research to understand and ultimately find treatments for CLCN4-related condition is at the heart of our efforts. With your ongoing support, we’re able to fund key research projects, collaborate with leading experts in the field, and connect the research community. Every donation brings us closer to unlocking vital insights into this condition and developing effective treatments.

Raising awareness

We work to raise awareness of CLCN4 as a condition amongst geneticists, neurologists, and scientists. This improves rates of diagnosis and accelerates the momentum for research, ensuring that this rare disease receives the attention it deserves. Every share, every conversation, and every event organised brings us one step closer to a world where CLCN4-related condition is better understood.

Supporting our community

Your donations have a tangible impact on the lives of individuals and families affected by CLCN4-related condition. From providing access to essential resources and support networks to offering guidance, we’re here every step of the way. Together, we’re creating a supportive environment where those living with the condition can thrive and lead fulfilling lives.

Thank you and don’t forget to share this page on your social media! 

 

Corporate Foundation Sponsors

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