by Rebeca Ridings Figueroa | May 7, 2024 | Research
Cure CLCN4 Pilot Grant Program: Meet the Recipients We are pleased to announce the recipients of our recent pilot grant call, awarding a total of £150,000 to advance the understanding of CLCN4-related condition. We received a number of strong proposals, and while we...
by Rebeca Ridings Figueroa | Apr 28, 2024 | Uncategorized
Cure CLCN4 Family Meeting 2024 Welcome to the 2nd Annual Cure CLCN4 Online Family Meeting, set for June 6th at 5:30 PM UK time. This entirely online event promises an enriching experience with a lineup of leading experts in the field of CLCN4-related condition. Don’t...
by Rebeca Ridings Figueroa | Jan 10, 2024 | Events
Cure CLCN4 Scientific Meeting 2024 Did last year’s Cure CLCN4 Scientific Conference leave you inspired? We’re thrilled to announce that the momentum continues with our third annual event! Join us on 7th & 8th June 2024, in London, UK (*hybrid), for...
by Rebeca Ridings Figueroa | Sep 4, 2023 | Research
Your Voice Matters: Join the study on Speech & Language in CLCN4-related condition We are thrilled to announce that the Translational Centre of Research Excellence for Speech Disorders (Australia) has launched an international study aimed at exploring speech and...
by Rebeca Ridings Figueroa | Aug 28, 2023 | Research
Pilot Grant Program 2023 – applications now closed Overview CLCN4-related neurodevelopmental condition (CLCN4-NDC) is one of the more recently discovered rare X-linked monogenic disorders. It is caused by inherited or de novo pathogenic variants of the CLCN4...
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