1st Annual Cure CLCN4 Family Meeting

Join us on Sunday 22nd August 2021 for an opportunity to hear from world-leading experts in CLCN4 and connect with other families navigating the journey of a CLCN4 diagnosis. 

What to expect

Cure CLCN4’s 1st Annual Family Meeting will be a half-day, online event hosted on Zoom. The meeting will feature talks by clinical geneticists and scientists from the CLCN4 and rare disease field, with each talk being followed by a Questions and Answers (Q&A) session. There will also be a family-led session, in which parents and family members will be able to discuss their main concerns with our experts. You can read the full meeting agenda by clicking on this link.

How to register

If you would like to register for Cure CLCN4’s 1st Annual Family Meeting please fill in the registration form below or click on this link. Registration is free and takes no more than 5 minutes! Those who have registered will receive a Meeting Information pack along with details of how to join the event online closer to the time of the meeting. 

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