by Rebeca Ridings Figueroa | Aug 12, 2021 | Uncategorized
The race to cure CLCN4 starts here! Join us on our journey to find a cure for CLCN4 by donating today! Our goal is to raise £50,000 to create a CLCN4 model of disease, which is essential for kickstarting scientific research into CLCN4. Together, we can make a...
by Rebeca Ridings Figueroa | Jun 21, 2021 | Uncategorized
Volunteer Opportunity (remote, unpaid) Cure CLCN4 is looking for a driven and talented individual to join the team as an intern/volunteer. Join us for the exceptional opportunity to build new networks, and obtain experience in the rare disease, and non-profit sector....
by Rebeca Ridings Figueroa | Apr 29, 2021 | Uncategorized
1st Annual Cure CLCN4 Family Meeting Join us on Sunday 22nd August 2021 for an opportunity to hear from world-leading experts in CLCN4 and connect with other families navigating the journey of a CLCN4 diagnosis. What to expect Cure CLCN4’s 1st Annual Family...
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